Possible epilepsy - advice and stories please :)

[adoptmama]

Just spent the morning at the hospital with youngest DD aged 2 (just). Started yesterday thinking she was pulling faces at me as her mouth on right hand side kept pulling down. However soon became clear it was not on purpose and thought maybe Bell's Palsy. Went to hospital this morning and neurologist is '70% certain' she has epilepsy. Tomorrow we have EEG and further examinations.

Just wondering really - if it is epilepsy - where we go from here. I don't know that much about the illness: just the various types of seizure, that it varies person to person etc.

Are there any kind of commonalities in children e.g. would they all be advised not to go on trampolines or climbing frames. Can it be 'out grown'. The only epileptic person I have known had very severe seizures and it really destroyed her child hood and education. If these are seizures DD is having now can they progress and become more severe or will they stay much as they are now?

Not actually in the UK so communication with doctors here is different and they don't necessarily welcome questions - it's kind of more like 'we are God, just do as we say and don't question us' :) So any shared experiences might help me get some perspective and info.

Thanks in advance.

I was diagnosed with epilepsy as a child though a much older child than your DD. I was advised not to cycle on roads or swim unsupervised, but obviously your 2 year won't be doing those things anyway. I also meet children with epilepsy at work, and I would agree with what Tulips said above about each case being different and we can't predict how your DD will be affected, but a large percentage can be controlled by medication. It might take a little while to find the right drug for her though depending on what range of drugs are available where you are. It is possible that she will grow out of it (I had a quick google but didn't find any figures for how likely it is, but I know it does happen). I was taken off my medication when I was 17 and then told I had grown out of my epilepsy, but then had further seizures a year or 2 later so it turned out I hadn't.
Like I said above, there is no way to predict if your DD's seizures will decrease, increase or stay as they are, but it is entirely possible to live a normal life with epilepsy. I went to uni, work in my dream job, got married and have a baby. The only thing epilepsy has prevented me from doing is driving.
Hope you get some answers from your drs today and you and your DD are ok.

My DH has seizures as a young teenager, but is now completely unaffected - no medication, no seizures for two decades.

thanks for the replies. still waiting for answers, but ... such is life.