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Covered in vomit, On a low -10 month old with Sandifer's Syndrome - Any one been there?

2 replies

BeeandBear · 03/02/2012 10:14

Just a bit of a cry for help on a cold day. My DS has been diagnosed eventually with Sandifer's syndrome at 10 months.
Most GPs told me it wasn't anything and made out it was because he was fussy.
I went private in the end and It's been two days on the medication now but I'm at an all time low wondering when it will get better and when I'll get my smily boy back. Is it odd he hasn't grown out of it yet? Why has it suddenly got worse? It's just so lonely sometimes to have to feed him at home all the time in case he projectile vomits or has screaming ab dabs and then have to cope with all the stares from cats bum mouthed women who look like I've tortured him or that he's misbehaving. He also doesn't sleep well in the buggy at lunchtime - so I have to make sure he sleeps at home which again cuts down options.
Any advice about non acidic food to give at stage where he wants finger food and chunky food?
I don't want to sound moany, know there are a lot of worse things out there. Just don't have family nearby or able to help and seem to be surrounded by friends with angel babies. He's such a sweet gorgeous bouncy thing when he's not hurty...but haven't seen it in a while.

OP posts:
Are your children’s vaccines up to date?
Elibean · 03/02/2012 14:05

No experience of Sandifer's, but dd2 had painful silent reflux (and a floppy larynx - two often go hand in hand) and I totally sympathise with wishing for your smiley baby back.

I also sympathise with not having it diagnosed for ages when you know your own child, and know he/she is hurting. Grrr.

FWIW, dd's reflux got worse at times after she started on solids - I expected it to get better, and it didn't until she was up on her feet and walking (which for her was not till 16 months!). She was on two lots of meds, and never slept well lying flat or on her back - combination of her breathing and the reflux. I got a buggy that you could tilt at an angle - that helped a lot, maybe worth looking on eBay? I think it was a Bugaboo of some sort, but those days are a bit of a blur Blush

And just the firm knowledge that your angel is twice the angel of all the non-hurty babes, because he is still your gorgeous boy in spite of the hurting Smile

twilight81 · 03/02/2012 20:28

Just a quick one but agree on the bugaboo, we have the bugaboo chameleon it's been a life saver for us, my ds still sits and naps in his and is almost 3. It can be sat at just the right angle.. Hope you find some relief for your little one soon.. I know how hard it gets xxx

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