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Day 4 of Movicol still no explosion!

16 replies

sep1712 · 30/01/2012 10:53

Does anyone have any experiance of this?

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CumberdickBendybatch · 30/01/2012 10:56

What is the dose?

We found that there was no explosion as such, but it definitely took a few days to work. DS was pretty much back to normal after a week.. but has one sachet a day to keep him that way

Cassettetapeandpencil · 30/01/2012 11:00

This reply has been deleted

Message withdrawn at poster's request.

sep1712 · 30/01/2012 12:42

Shes on one sachet morning then one at night. She's never been constipated or not wanted to go to the toilet but has been having tummy aches since last October. The Doctors have never found a cause and i feel like there fobbing me off. She's always been regular, as far as you can tell with an independant 5 yr old. I Think I expected a full on leaking child if she was on these. Her movements seem as normal. Sorry if to much info and thanks for you replies.

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IHeartIona · 30/01/2012 12:50

My dd was on movicol at 2 nearly three, the paediatric sachets, and for the clearout was on up to four sachets a day. this brought on clearout but was still not explosion.

CumberdickBendybatch · 30/01/2012 13:17

sep did the GP feel her tummy? When DS was constipated it was really obvious.

sep1712 · 30/01/2012 13:46

We're under a consultant at the hospital and he said he could see blockage on the x-rays and feel it in her tummy. Other doctors that we've seen havn't felt any lumps and neither can i?
Maybe her dose needs to be upp'd then? Were not seeing him again for another month and her tummy pains are very bad at times so i really don't want to leave it that long?
Hopefully they'll work soon then. Fingers crossed, not whilst she's at school!

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DeWe · 30/01/2012 14:14

2 sachets a day wouldn't give an explosion as far as I'm aware. It just softens it up enough.

When dd2 had them she had 1 day of 2 sachets, next day of 4 sachets, next day of 8, and then the explosion happened. She would have been on 12 the next day if it hadn't, but 12 was the maximum.

Once the explosion had happened it was 2 a day for about a year, then we slowly dropped it down.

With dd2 it was tummy aches too. She's a drama queen and I ignored the tummy pain for ages as she could always find something. I was surprised as I had thought she was going fine, but they were right, once we'd got into the swing of the movicol she rarely had tummy ache (except as an excuse not to do something).

sep1712 · 30/01/2012 20:40

Thanks DeWe, its made me feel better. How did they find out she was blocked up? How old was she? Is she back to normal without the movicol now?
DD was rushed into hospital in October with suspected burst appendix but it wasnt that but kept in for a week on iv anti box. Bloods were all over the place etc. They still couldn't find where the tummy aches were coming from. They did confirm she had blood posioning at the time. The pains have been consistant since then. Doctor after doctor havn't given up a conclusive cause untill Friday.
I'm just wondering if they are stabbing in the dark and maybe the low dose of Movicol was given to keep me quite? surely like you suggest, they should be increased daily till a explosion?
I could see some air pockets on the x-ray but i'm not medically minds at all.
Tummy is still aching. I don't know if i should go back to see my GP again tomorrow.
I hate going to the doctors and normally keep my three well away but i feel like a moaning minny! I'm sure they've written neurotic mother all over her notes! There not the ones that have to deal with a crying 5 yr old trying to hide her pains so she doesnt have to go back again!

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DeWe · 31/01/2012 10:16

I took her to the doctor after nearly a year of complaining about tummy ache, but it suddently got every day rather than just when she didn't want to do something. It seemed to start after she'd had a urine infection, but I don't know if that was connected.

She was 4.6 when we took her and the doctor did bloods, and also referred her to a paed, who looked at her, felt her tummy and sent her for a scan which confirmed faecal impaction.

I wouldn't have guessed she had constipation as she seemed to go fairly often, not every day, but obviously I wasn't monitoring the amount etc like you can do with nappies. Wink What I had noticed was that she would sometimes say she needed to go, then get the the toilet and say she didn't need to after all.

She came totally off the movocol last summer and she's 8 now. (7 then) I think she had about 18 months on 2 sachets a day, after she'd been cleared out. Then we reduced it down to 1 sachet a day. Then 1 every other day. If she didn't go for a couple of days I'd give her an extra sachet for a couple of days and then reduce down again when she was back to normal.

I've just got the info out of the last packet again, and, asuming you have the same packet as me at the bottom it gives a daily dose regimen for faecal impaction. We got to day 3 when it came out-we did it over a long weekend so she didn't have to have it at school. We were told give her large doses until it's coming out like water to make sure it's clear. If you're giving a large amount then I'd keep her off school or do it over half term as it does pour out without much warning.

She did still occasionally get tummy ache even after clearing, but the doctor thinks she gets abdominal migraines. Certainly tummy ache comes on with stress or excitement, but we have learnt to recognise when it's constipation not other causes. But it took us some time.

DeWe · 31/01/2012 10:17

Oh, sorry I was going to suggest going back to your GP and saying that surely it should be faecal impaction, why isn't it being treated as on the packet?

I'd guess taking a small amount might make the tummy ache worse as you've got the softer stuff building up behind the blockage.

sep1712 · 31/01/2012 16:31

Thanks DeWe.......can't believe we have another 2 yrs of this! how did you cope? Its driving me potty (pardon the pun) already.
I went to our GP today and she said to up her dosage to 3 sachets a day. She had a look in her book and it said under 6 were only allowed 3 sachets a day? i thought if i did 3 a day and she's no better on Friday i might take her back. She was really complaining and quite today, usually runs round like a headless chicken as soon as we get to the surgery even if she's been at deaths door 2 seconds earlier!
You'd think that it would start to be a bit runny after so many days on it. She's gona have to go to school as i'm working for the rest of the week but Granny's are on standby. She's only in reception and all the staff are aware. I've sent same changes of clothes in and there happy to help change her. Were so lucky to have such a wonderful school, they've been a god send!
I'm glad to hear your little one has turned the corner. Did they re scan her once she was clear?
I'm so scared there is something more serious going on and there missing it!

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sep1712 · 01/02/2012 20:35

Still no explosion! just the 3 poo's a day girl! Lots of tummy pain, very pale and slightly warm tonight but tucked up asleep so cant be in that much pain!

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DeWe · 01/02/2012 21:02

Is she 5yo? It says on the information sheet:
"For faecal impaction, Age 5-11 years:
Day 1 4 sachets
Day 2 6 sachets
Day 3 8 sachets
Day 4 10 sachets
Day 5-7 12 sachets

Take in divided doses with 12 hours. Treatment can be stopped when the medicine has worked. This is shown by the patient passing large volumes of stoot and/or watery diarrhoea" (but you do need to then continue with 2 sachets a day to get them back into "good habits"!)

You could try showing that to the doctor, or possibly talk to your pharmacy if you've a good one.

We didn't get a rescan, but the paed saw her regularly, about every 4-6 months while she was having it, and would feel her tummy and could feel it was clear.

sep1712 · 02/02/2012 18:49

I found that sheet aswell but our GP was reading it out of her book??? Still not much joy, def not watery. No changes except twice tonight she wee'd herself like a water fall ( has some tiny leaky wee's sometimes but never full on wee herself) ? Might have to drag her back again to the GP's ?
Thanks for listening to me moan DeWe

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neverputasockinatoaster · 02/02/2012 21:47

My daughter was on Movicol for faecal impaction and we had to do the building up of sachets as well. I had not then discovered the joys of MN and no one told me what would happen when the blockage cleared! She went to nursery as normal and they had to ring me to ask me to get her some more clothes!

She was 2 and on the paed stuff. I still have some as we were told to keep it for emergencies....... I can get more if it passes its date.

DD was referred to a paed who then saw her a further 3 times and discharged her.

You have my sympathies as it is horrible.

sep1712 · 03/02/2012 08:35

Thank you npasiat, it does sound like everyone builds up to a bit amount of dose's untill all is cleared so i think the doc's have got it wrong between them?
Doesn't fill you with confidence that they haven't missed something else. You put all your trust in them again and again! You shouldn't have to reshearch and come up with a solution, im sure thats what there paid for! Ok rant over, back to the doctors after work again!
Thanks for all your help.....i'll keep you updated.

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