Chronic constipation and a screaming DS :-(

[Jerbil]

DS1 has very severe eating difficulties(psychological). This no doubt contributes to his severe constipation issues. The routine being mucked up at Christmas has not helped and over the Christmas period he did not go for 7 days. Then when he did he was sat screaming and gripping me shouting "get it out". Sorry for the graphics but he did pass a very large stool. He couldn't walk for a couple of hours and lay on the sofa feeling very sorry for himself. (He is usually constantly demanding).
I phoned the GP and he just told me to up the medication - Optifibre powder (he's on this because I cannot get him to take any of the other). This is smell and taste free so I can actually hide it.
That was 5 days ago, since that nothing except him soiling himself which he obviously cannot control.
I just don't know whether to take him back to the GP, keeping in mind they cannot give us Movicol etc because he will not tolerate it.
Any advice would be appreciated.

this is how my son started..and it has been going on since birth. How old is your ds, if you dont mind me asking?

its sounds like he has overflow and may need to up the meds to clear the intestine..id take him back as, u dont want his intestine to stretch and be unable to control it. this is what happened to my ds and he had to go back in pull ups at 7/8yrs old..took 12mths to get him sorted and now they told me to ween him off the movicol and 3 mths dwn the line its started again and he is having stomach pain and unable to go and having accidents..so i have had to start the movicol again. I am desperate for them to test him as i fear its medical with him but they wont do anything just throw meds at him that work then they have to ween him off because longterm use isnt suggested but as soon as the meds stop 3 mths after he gets clogged up and here we go again.

He turned 6 last week. Yes he has been like this pretty much since birth too. Had some instances of blood in the past too. When he was 2 he said "look Mummy I did a red poo". Not something you should hear.
It's a constant battle isn't it to keep them at the correct stage. I agree they do not seem to want to do much to help in our case too. The only people qho've really helped us are the community nurses, but he got discharged from them as like your DC, he had improved. It's that type of condition I think. I used to think it was due to the amount of milk he drank, but when he was 3 I removed his bottle and he never drank milk again! so that cannot be it. with an extremely restricted diet I don't have much choice of what I can give him.

same here hun..its a constant worry!! I am looking into gluten free diet..as ive discovered there dads cousin has celiac disease and is gluten intolerant and can cause constipation, slow growth, etc and most of the food my ds will eat is gluten based. So im gonna speak to docs and ask for a test and if not im going to cut the gluten out and see if any improvements. He isnt a good eater either..refuses all fruit and veg..tried everything. But i would definetly take your ds back to docs..poor little mites.

I was going to suggest you look into him having a gluten intolerance such as coeliac disease as well. Also, how much water does he drink? He needs to have water to help flush things through, especially if he's taking a fibre-based constipation remedy.
So sorry he's having these problems - it's horrible for both of you. :(

Tonight he has wet my bed, needed three baths, so decided to keep him from school tomorrow. Not nice. Took him to docs: movicol and lactulose on top of the Optifibre. will look into the gluten side of things - thanks. and yes you are right about the water, doesn't drink enough at the mo - part of the reason I'm going toi keep him off.