Can we start a new asthma support thread now dreaded winter season is looming?

[Knackeredmother]

Hi,
I can't seem to find the old support thread. I lurked on it during many long, lonely and frightening nights and admissions with ds over the past year and a half.
My ds is 21 months now, was hospitalized at 8 weeks severe bronchiolitis (really thought he would die) then every 3-4 weeks since whenever he gets a cold. No symptoms in between colds but a wet, crackly chest with some wheeze with every cold. Plus of course the dreaded tracheal tug and sternal recession that heralds an admission.
It is all so bloody draining and heartbreaking!
We are just starting with a new bout today after a whole 8 weeks of being well. I am debating whether to call in sick for my nightshift tonight or leave poor hubby with an inevitable hospital admission AND our 4 year old!
Anyway, would be good to hear from others going through similar so we can all support each other ( or direct me to the original support thread!)

Hope the pred does it job alibobins.
Ds is also suffering with the cold weather he has a horrid cold and had a attack last night. He is lying on the sofa coughing away, and needing ventolin ever four hours.. I think we will be going to the gp tomorrow for antibiotics.

Hope they are both better soon.

Ds is plodding along at the moment, although getting frustrated he has to go in his pram rather than walking if we are out for more than 10 minutes. At least we only have two weeks until his consultant appoinment

Ds2 seems to be finally on the mend and has ventured off the sofa today :) still wheezy but nothing like he was x x
Cedmonds hope ds is feeling better.

Hi Glad he is getting better alibobins
Ds went to school today had no choice really as the education welfare officers have got involed. He is OK wheezy when he came home and has just lied down doing nothing. He is on 10puffs of ventolin 4 hourly at the moment and has antibiotics.

Cedmonds that is awfull why have they got involved? ds1 hasn't made a full week since september and school are fine with this as it's a medical issue.
He still sounds really down :(

I dont know why he has had a lot of time but know I really dont understand as the school have got all the peads letter inculding GOSH. The doctor is going to have a meeting in school in Feb about him. I think half of the problem is he can look so well even though he isnt if that makes sense. He has been in hospital bouncing up and down in bed whilst on oxygen and having really low stats.
School phoned yesterday and said why wasnt he doing PE as he looks so well they made him do it and he only lasted a couple of mins.
I am hoping that when they have the meeting it will all be sorted.
Hows ds2?

Ds2 is still not himself but we are back at the doctors Friday x x
That is the case with Ds1 he looks so well and copes so well the consultant said children quickly adapt to not being able to breathe properly and get used to the feeling X x

Poor ds2 hope he is ok and you stay out of hospital.
I think the sudden change in weather is making at lot of the asthmatics suffer. I know my dn is suffering and my sister.

Hi all, I found you!!
We are going through the same with our 2 yr old. Just got out of hosp sunday for attack which is 6th/7th time she has been rushed in with blue lights. She didnt respond to the usual nebs this time and was put on IV's. :( She had wires and monitors everywhere.
Much better now but this is happening every 4-6 weeks and it is exhausting as you all know. Its good to have this thread to run to and share on.

Allboxedin sorry you have had to find us it does sound like u are having a rough ride ds1 always used to end in resus and on lots of medication to control his attacks but he is now 7 and well controlled on a cocktail of drugs x x we do have a home nebuliser but only to use whilst waiting for an ambulance or for maintenance when discharged from hospital x x

Ds2 is doing much better doctor was happy with his progress but wants him to stay on a low dose if pred for another 7 days and work on reducing his blue inhaler x x

Allboxedin, hope things are better for you soon.

DS is bad again, hoping to avoid a trip to A and E tonight. Back to hospital next week so hopefully will get him under control then.

Sirzy sorry ds is bad again :( ds2 has had a relapse again although think it is more his throat thistime with a wheeze thrown in for good measure lol x x

Well we now have singulair granules, how long do they normally take to make a difference?

sirzy was anything else suggested? both boys take singular I am not sure how long it takes to work but some people only take it during a cold so maybe it is quite quick.

Ended up at a&e again sat morning more nebulisers steroids and antibiotics :( ds2 does seem to be improving slowly.

No, she wanted to stick with the clenil with the singular for now. I hope it works and does so quickly!

Hope he feels better soon.

Hi all wanted some advice if anyone can help. My DD 4.7 has had asthma since she was 9 Mths and has had several admissions with asthma related problems (pneumonia x 3) and has even had her tonsils removed at 3 in the hope that a wider airway will allow her to breath in more of her inhalers. She currently takes seretide 125, singular, ventolin, occ pred which we have been advised to keep at home always, and now her paediatrician wants her to start a new drug called Slo-phyllin and I wondered if any of you have any experience of it as some of the side effects look a little scary and if it has made a big difference to any of your children. Thanks in advance

jake I don't know, but DD1 is on Seretide, Singulair and Ventolin and her Paediatric Respiratory Consultant says that at her age (she's 5) she's pretty much at the maximum dose and he wouldn't want her to be having any more medication unless really really necessary. Having said that though, her asthma is fairly well under control, so guess what you need to find out is what are the bench marks as far as getting her asthma under control, i.e. lack of admissions, peak flow at a particular range etc.

Hi
jake
I agree with i love ds is also 5 and is on seritide ventolin and singulair. We have been told by great ormond street that it is the maxium that he could have.
But it does depend i think on how well controled they are. If she is having lots of admissions/attacks they will want to change her medication untill she is under control.

Hi Jake ds1 is on same meds as previous posters but is also on an antibiotic called Azithromycin which has helped loads this winter no major admissions

Having a really bad time with ds2 was up most of last night with another attack they seem to be happening quite frequently at the moment. He is also developing mire and more allergies and gas quite a scary reaction to tomato just over a week ago x x spoke to his lovely consultant who is seeing him on Wednesday x x

Ali hope Ds is better soon and things stabilise.

6 weeks on singulair and the difference for Ds is amazing - for the first time we can consider going out without his buggy as he can walk without getting breathless.

Really glad things are improving for your ds
We are the opposite ds2 gets out of breath so easily it's so frustrating when all they want to do is run around and have fun

It is horrible to see isn't it, especially when they dont understand why they have to sit still for a little while. Hopefully you get some answers on wednesday

I am so glad we saw the consultant today as ds2 was really quite poorly he's had chest x-ray which shows some cloudy patches his sats were 95 and showing slight tugging we have been allowed home with pred and 10 puffs of ventolin every 4 hours and strict instructions to go to the ward if he gets worse x x ds1 is having some surgery tomorrow so hope I don't end up with both on different wards

Hope the quietness means all is okay x x

Ds2 managed well untill this morning :( we have spent the day on the children's ward and have come home with antibiotics and inhalers every 2 hours x x

hello! Any advise please? After a horrific episode of being blue lighted to Children's Hospital and a scary incident with DD1 being at school (long story) she still isn't really back to normal. Ugh. The GP prescribes anti biotics and Pred. Consultant appointment isn't for another 3 weeks, and asthma nurse can't really prescribe anything stronger than what she's on....

Not sure what to do.