Hip Dysplasia

[lana25]

My DS is 11 weeks old and was diagnosed with a clicky hip at birth, he has been in a pavlik harness since he was 4 days old and we've never worried as the health experts assured us this would probably work and didn't even want to talk about next steps!! imagine my horror yesterday when we went to the consultant who scannd him again and said there had been no improvement since hsi last scan 7 weeks ago and he would remove the harness, my poor little DS now has to go back in a month for them to try and manipulate the hip into the socket, if this works he will be in plaster for 6 weeks then checked and probably in plaster for another 6 weeks, i was sent home with very little information and told to look at the steps website which i have, just wondering if anyone has been through the same.

oh sweetie, I was you 13 years ago with my 1st baby. STEPS were excellent they gave my info, 2 local contacts(still friends now) and when all of these options, Pavlik harness, etc didnt work my DH went on to have full Bilateral open reduction at 5 months old. Which has worked fantastically, so please get in touch with them. talking to other parents who have been through this and their are varying degrees of treatment as you know is essential. The lady when we had our op who shared with my DH, her DH didnt require surgery so, take it a day at a time with the options open to you. I would be happy to email you if you want to inbox me, my M in Law has just put me in touch with a neighbour whose DH has just had surgery and is in plaster.
The time in plaster flies by (honest)but you will need a few things from steps, pushchair(twin one for width) advice on nappies, how to change them(pillows) and a longer strap for car seat etc.
It is a massive shock, I know but honest once you have the information you need you will feel a lot calmer but it is very upsetting. As I say happy to chat if you want any advice. Stay focussed on getting this fixed now as later on it could be a huge problem and is so important to diagnose and fix early.

My dd was also in the pavlik harness from 2 weeks old, but thankfully it did work for her. Steps are fantastic, I can't recommend them highly enough.

Lots of wonderful people in their chat rooms with success stories.

hi all

I have recently found out by daughter has been diagnosed with DDH, she is 5 and half months old, she was born with talipes club foot, said it would heal it self, but i was concerned and said something is not right, i had to fight to get a scan, and have found out she has to have surgery to correct this and will be in a cast up to 12 weeks- while they change it every 6 weeks- i am disgusted that they have only found out, she has had it since birth, and i am now taking legal action towards the NHS. if it gets to 8 months it gets worse as the bones start to harden. She is now starting to feel discomfort and no one is willing to push the op through faster... It is more common in girls- and happens to 1 in every 4000 babies.... it really good they have found it early but just keep pushing guys. Steps was helpful, :)

Sorry I kept putting Dh instead of DD!! I am going a bit mental as selling our house and have had to house Dr myslef! Rlally, i am so sorry they did not diagnose it early, that happened to a lady I met thru STEPS with her DD. She was a nurse and knew it was not right, her DD has had a few complications to say the least. It is absolutely imperative to diagnose early and remedy.

Rially, that is awful. i can imagine how angry you must be feeling, my little boy had a scan at 4 weeks which was really too early to see anything and didn't get another one until 7 weeks later which is how we discovered the harness wasn't working, they hospitals really have quite a laid back attitude towards this and i feel like they don't take the babies discomfort into account. i'm lucky as he was diagnosed at birth by a really good paeditrician.