Overactive/Irritable Bladder in kids - Botox injections

[CowgirlM]

Hi - I have a daughter aged 8 with an overactive bladder. Meds have been unsuccessful and next step is to consider a Botox injection. This seems drastic to me and carries fairly high risks. Has anyone had any experience with this procedure in children?

Hi
I have a boy aged 9 1/2 with similar prob (day and night enuresis) - we have treated him with what the doc described as 'industrial doses' of Oxytrol patches and Minirin melts most recently, but before that many oral meds, Chinese medicine, Bowen Therapy and chiropractic over the five years since we started to treat him - all to little avail. The next step for him is Botox too, and honestly, compared to the potential side effects of Minirin I think it seems reasonable to take this course of action. The impact of incontinence on his social/emotional and academic success is significant, so on balance it seems to be worth a try. I would be interested to know what you decide and of course, how your daughter goes. My son is scheduled for his Botox on June 3.
Cheers,

Hi MarnieTiggett - we haven't made any decision as yet -our appt to speak to the Urologist about it is set for early next week. I have not heard of Minirin at all - we are on the full adult dose of Solifenacin, which is not even registered for use by children. How did it work out for your son?

Hi matthew2002smum, for nights - do you mean in terms of pullups or medication? For medication, we have not used anything as yet as our daytime problem has been the biggest concern, but today we have been given a prescription of Desmomelts, which I now need to go and research. We're using DryNites pullups as protection, which our community nurse arranged for us to get free of charge (we didn't realise this was possible for all the years until now - it saves a fair bit of money!). For daytime - the Urologist said that we need to continue with our Solifenacin (full dose) which has reduced my daughter to 2-3 wetting episodes a day, and with her co-operation, it is possible for her to stay almost dry on the odd occasion. She has a Malem alarm watch with a silent buzzer to help remind her to go to the toilet every 2 hrs (before her bladder is full enough to spasm). As she is getting older, her co-operation and interest in doing what is neccessary to stay dry is increasing, which I think is more likely the key to her recent improvement, rather than a sudden increase in the effectiveness of the medication. The Urologist strongly advised us against the Botox injection unless she has not outgrown the daytime wetting problem by the time she is a teenager and shows an interest in having the injection herself. There is a 15% risk of being left in a state where she needs to self-catheterize for at least 6 months while the Botox wears off - this is very traumatic for a child and will certainly require her full co-operation.

Hi all,
Are any of you still following this thread?
I joined mumsnet exactly for this issue. my son is nearly 7 and is still incontinent day and night (up to 3 accidents per day and soaked at night). he recently started medication - desmomelts at night and detroxitol in the day. I think the meds have made a slight difference but he still has frequent accidents.
As a mum i feel i've tried everything - reward charts, patience, ignoring, shouting and finally being referred to a doctor who's prescribed meds.
it's lovely to read messages from other parents who have a similar issue.
it's really beginning to affect my sons self esteem and it seems to be the constant focus of his little life - is he wet? has he had an accident? does he need to go to the toilet? It's heartbreaking. we're trying to work on him getting changed himself after an accident as he will sit in wet pants as if pretending nothing's happened so he smells pretty bad and i'm worried sick he'll soon get teased at school.
i'm still in 2 minds whether or not it's learned behaviour and bad habbit or purely medical. I suspect it's a bit of both maybe??
any advice would be greatly apprecited!!

Hi everyone - just stumbled on this old thread as my 8 year old has OA bladder and just been given new meds just wondering how everyone is doing now?