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Children's health

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Viral meningitis - is sleeping 20 hours a day normal for an 8-year-old?

20 replies

Ketrick · 10/04/2011 16:15

Last monday my 8-year-old came home from school with a terrible headache. He has never complained of a headache before. He is sparkly, always laughing and running and jumping around. He never needs more than 9 hours sleep a night and is usually bursting with energy and fun.

Anyway, on Monday, after a few hours of really bad headache, which wouldn't go away with Calpol, he went to bed. He woke in the night with a fever of 39.8 and vomitted. I got the night doc out and she said he probably had meningitis caused by a virus.

On Tuesday morning he had a rash, so I took him to hospital, but the rash was caused by vomitting, so even though he was constantly vomitting, they sent him home. To cut a long story short he held down no liquid, and wasn't at all interested in food, for three days, by day three the headaches had subsided, but the GP came to visit him and said he'd be fine the next day (he wasn't). He never suffered from diarrhoea throughout this whole week. By Friday he was sick when I tried to get him to eat food. By saturday he was no longer being sick when eating rice or Rich Tea biscuits. Yesterday he lost control of bowel and bladder. Today he was sick once, but managed to hold down mashed potatoes and roast chicken since.

My primary concerns are that he is now sleeping for 20 hours a day, this hasn't changed all week, and also he says odd things and then corrects himself, and is very wombly and wonky when he walks. He hasn't slept during the day since he was two, and not suffered from toilet accidents since he was three.

Does viral meningitis sometimes set a child back a few years until they get better? Is there anybody out there who has a child who has suffered from these symptoms? I feel as though the doctors were treating me like an over-protective mum, and I am unable to communicate to them just how odd and unusual his physical symptoms are.

OP posts:
TheVisitor · 10/04/2011 16:22

I'm surprised they didn't take him into hospital if she diagnosed meningitis. Your child and if you're not happy, then take him back.

WuzzAndBuddy · 10/04/2011 16:24

I'd be taking him back to the hospital. Now.

Ketrick · 10/04/2011 16:24

Hello Visitor, they said that menigitis caused by a virus is not usually life-threatening. I feel I will be dismissed as tiringly fussy if I take him back to the hospital. He is now eating, but it's just the sheer amount of sleep he needs, that's what I find astonishing.

OP posts:
catsareevil · 10/04/2011 16:25

IMO you should get him seen again - the GP on day 3 expected him to be fine by the following day, and he is no better (and in fact possibly worse?). Your GP will most likely be shut today, but there will be ab out of hours service open.

catsareevil · 10/04/2011 16:27

sorry,that should read an not ab.

If you are having trouble getting over his symptoms to people you could print out the text you have posted here to show them.

TanteRose · 10/04/2011 16:28

deffo take him back - like TheVisitor, I am surprised that he wasn't hospitalised/tested etc.

YOU are his mother, no-one knows him like you do. Always go with your gut instinct on something like this...

really hope he is better soon Smile

TheVisitor · 10/04/2011 16:33

My nephew had viral meningitis and was treated in hospital. He was absolutely fine afterwards.

OeufaBrain · 10/04/2011 16:35

Viral meningitis is not life threatening BUT it can make you feel VERY poorly for quite a long time. Ring the meningitis research foundation's free helpline, they are way better informed than many gps etc, who don't experience it that often.

24 hour helpline here

Ketrick · 10/04/2011 16:40

Thank you for all the support. I have just telephoned a charity called the Meningitis Trust (which very helpfully has a 24-hour helpline). The lady told me that even though he has mostly fought-off the virus, there might be some nasty by-products sloshing around his brain and that huge quantities of sleep are a normal response to being able to dispel them. She also said that viral menigitis requires several weeks to get-over.

The problem with the hospital is that it is currently awash with children in this area with gastric flu and I think they has assumed that all kids with similar symptoms have the same illness, that's the impression I got. I will keep a diary of his sleep times, though, and I intend to take him to see the GP next week to give him another check-up.

OP posts:
haggis01 · 10/04/2011 16:46

I agree with OeufaBrain- call the helpline and talk to the out of hours doc. I am surprised he wasn't kept in hospital. Viral meningitis can be quite mild for a lot of people but extremely debilitating for some. I had it as a teen and was in hospital for two weeks and lost almost 2 stone from a very thin frame and was poorly/weak for a long time after. Basically he has been very ill for a week, I am surprised he is not dehydrated and still having headaches - the wobblyness could be due to this. He may be sleeping a lot as he is so weak. I would be worried too - please get some help.
I hope your son recovers soon

catsareevil · 10/04/2011 17:08

Ketrick

In your situation I would still contact the out of hours service for advice - the meningitis helpline people arent medically qualified.

larrygrylls · 11/04/2011 07:14

Not a doc but..

How on earth can you diagnose viral vs bacterial meningitis without testing the cerebrospinal fluid with a lumbar puncture. Mostly, people are sicker with bacterial but is that ALWAYS the case? In addition, is it easy to diagnose meningitis vs some of the viral encephalitises (which can be caused by measles, herpes virus etc) just by looking at someone?

Given that your child seems to be exhibiting neurological deficits, I would think you want to get him assessed by an expert, not a GP. I would go into A&E and demand proper assessment by a paediatrician/neurologist? Personally, it sounds like the GP is taking huge and unnecessary risks by not referring your son on for tests?

haggis01 · 11/04/2011 08:26

larrygrylls is right the only way to confirm meningitis and which type it is is by doing a lumbar puncture which requires a stay in hospital . The doc said she "suspected viral meningitis", however the OP's sons headaches subsidised so it may be mild VM or somethingelse. VM is hard to diagnose as gastric flus etc can look the same.

I hope Ketrick's son is starting to feel better today

oricella · 11/04/2011 09:57

Larry - I think that the likelihood of bacterial meningitis can be determined by testing CRP levels, using blood test rather than LP. The way they explained to me when DD had meningitis is that the high CRP levels were indiciative of bacterial meningitis and they don't go that hight for viral meningitis. IIRC she didn't get an LP until a day after they'd started treatment

Ketrick - hope your son gets better soon, and please don't feel like you are a nuisance to HCPs - it's a serious illness and can take quite a while to recover from and in that time you will need all the reassurance you can get

larrygrylls · 11/04/2011 10:07

Oricella,

I an sure that you are right, although when our 5 week old son was in PICU with a respiratory problem, they insisted on doing an LP despite normal levels of markers for bacterial infection (presumably CRP amongst them). When someone acutely ill, suspected of some for of infection, presents (especially a child) they treat with antibiotics immediately and test later. In any event, it does not sound like the OP's son has had any diagnostic tests at all.

blinks · 11/04/2011 10:13

i agree that a definite diagnosis hasn't been made so he needs to be reassessed, i think urgently based on his symptoms...

oricella · 11/04/2011 10:18

completely true Larry - they tend to go in all guns blazing and work back from there. I guess with such wee ones they want to make sure there's nothing else lurking. My DD was only 7 weeks and LP picked up another virus too

It does sound that OP son had no testing at all and I agree that sounds iffy, just wanted to point out that at least a basic blood test could play a role before going in for an LP

Eggcelentexampleofmumoneggs · 11/04/2011 10:24

Take him back to hospital now, insist they look at all his signs and refuse to go, it's been goingbin long enough, poor lad :(

saggarmakersbottomknocker · 11/04/2011 16:22

Ketrick - your poor boy. I agree he needs to be seen and get a proper neuro assessment and diagnosis. I'd be especially concerned about the loss of bladder and bowel control and general wonkiness TBH.

sneezecakesmum · 11/04/2011 19:13

My DD as a teenager had viral meningitis, unbearable headache, neck stiffness, photophobia and fever. No D&V though. It took her several weeks to fully recover, and she was exceptionally tired. She had loads of antibiotics 'just in case' as she did have one non blanching spot! She wasnt confused at any time so I would be a bit concerned that your LO is still so unwell.

I would ask your GP to give him a thorough check up and blood tests, but I suspect it is a lot of post viral horror and the sleeping is the body's way of getting better. Don't allow him to become further dehydrated (dehydration increases drowsiness) and encourage a light diet, but sleeping is a normal response.

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