Poor weight gain 3 year old. Coeliac's Disease?

[nevergoogle]

Paediatrician wants to test DS2 for Coeliac's disease amongst other things.
Any experience?

Its certainly something that should be tested for in a child with poor weight gain as that is a classic presentation of cd in children.

I've been diagnosed with coeliac disease for 15 years, and it hasn't stopped me doing a single thing. I travel round the world for work, so eat out loads - the diet can be annoying, but you get used to it. And I feel 1000% better than before

Did you have any symptoms when you were pre-school age CMOT?

Yes. Absolutely.
Dh has coeliacs.
Ds2 was tested for coeliac and it was negative. Howevever, they found on looking at his red book that his growth and height had slowed down from 4 1/2 (he was 6).
Aged seven he presented with type one diabetes (linked genetically to coeliac). If I had known about the link with coeliac I wo uld have spotted the signs months earlier.
He is now 11. He has had a dodgy blood test for coeliac but not conclusive. He is very windy. I am seeing the consultant on tues to progress things. I think he'll need another blood test as I am not going forwards with scoping him.
It's not the end of the world, I've learned this from dealing with my own dh's diagnosis, but at least finding out means that you can manage it, like you've done.
Please watch out for t1 as well.

I was always the one who would be sick, have a runny tummy, and had constant mouth ulcers. That was a constant through my childhood certainly, but its hard to know if that was cd or not - I wasn't diagnosed till 25 after being really ill for 4 years

t1?

So sorry, type one diabetic. Should have explained.

brambleschooks, how was your DS tested for coeliac? My DS3 is 3.7 and had biopsies done during a fluoroscopy. They came back negative, but positive for dairy intolerance. His height and weight started dropping just after he was 2 from 95/91 centile to below 45 on each. He is not growing at the rate he should be. He is being 'monitored' by the dietician, but nobody seems to be looking any further as to why the lack of growth.
I've heard that dairy intolerance can often mask coeliac. What signs should i be looking out for?

Look on coeliac uk's website, it's very good.
My ds has blood tests at the hospital as he is diabetic. Screening for coeliac is part of this. They look for particular markers in the blood. If there is sufficient cause they suggest that a scope is done to sample his stomach lining to see if the villi are flattened (I think!). No scope for him.

Ps, good luck with ds!

Quite likely, the more wheat you eat the more ill you get, dairy is often the early sign of gut damage. There is also less obvious part of pre-celiac where tests can be negative, but drs insist that you keep eating wheat so you get more and more ill until, bingo, you ARE very ill so it shows up on tests. My ds is gluten sensitive and he was very ill, but not ill enough for it to be celiac. I put him on the diet and he improved dramatically, a couple of years later drs realised that we did a right thing.

You need to research it in depth to understand the problem as it's not usually black and white.

we've been told to make sure he eats plenty wheat between now and the tests.
he's munching on a cheese scone right now.
he eats a varied diet, but in such small portions.
is this behavioural only? or could it be a sign of something else?
he was constipated and bloated and we reduced his milk considerably as we felt the milk was reducing his appetite.

members2.boardhost.com/glutenfree/

The above is a good forum for coeliac queries.

My ds2 was 97th percentile until 1 when it dropped dramatically. Because he started out a large baby it was difficult to get any action until he was nearly 2 and in hospital with a chest infection. His symptoms were lack of growth, sickness after eating, swollen stomach - looked like a starving cold from charity ads, lethargy, delayed walking, translucent skin. After diagnosis, by blood test followed by biopsy, he was put on gluten free diet and picked up his growth straight away. He's now 9 and almost the tallest in his class despite being the youngest.

It was hard adjusting to the diet at first, but now were used to it, and don't find difficult except eating out, which we don't do much of partly for that reason.

It can run in families - 1 in 10 chance if someone is diagnosed- so worth getting close family tested, as it doesn't always show up as outward symptoms.

hmm
moderately elevated c reactive protein
mild vitamin d deficiency
mild iron deficiency
sweat test - of course his result was just on the wrong side of normal/possible CF but very small sample.
paediatrician not overly concerned.
few more test results to come back.
[buconfused]

sorry, i namechanged. it's me.

bump

Friend's daughter has it - doesn't stop her doing anything except eating certain things now they know. But she was very poorly - totally lethargic - had started walking and gave up - just lay onthe sofa all day. Runny tummy all the time, no muscle tone, sleepy, very very pale. DH and I were worried she had some kind of cancer so were actually very relieved with the diagnosis, as were her parents, because it is easily mangeable one you know about it. Her dad is diabetic (has been since childhood) not sure if that is linked.