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Original poster

use of desmopressin for bed wetting

17 replies

happyathome · 28/01/2011 14:17

hi.Got a DD 8.5.Been on desmopressin for nearly 3 months now.not totally dry at night depite this.talked to GP and loked at ERIC.Would appreciate any advice/sharing of experience,how it went for your LO and after treatment.GP went straight for Desmopressin rather than other methods.Has this happened for anyone?.
thanks

OP posts:
MungBeans · 28/01/2011 14:23

My DD(9) is on her first month of Desmomelts and isn't dry yet (although much drier). I'll be watching this thread with interest.

bumpybecky · 28/01/2011 14:32

the gp might have prescribed straight away as it's an easy option vs alarms which might be in short supply, or only available via a specialist clinic. Did you also get a referral?

we were referred to the enuresis clinic and had the alarm, eventually got it sorted but after approx 9 months being dry the wetting started again :(

after that we started with the nasal spray (not sure if this is still given), then moved onto the melts, moved up to the stronger melts (double dose) as the first dose had worn off (not sure if it was due to child getting bigger though) then eventually moved to tablets (as there were manufacturing issues with melts and pharmacy couldn't get them).

our specialist advises a break of a week after 3 months meds, just to see if the problem has gone, but seeing how you're still getting accidents with the meds, that would seem unlikely :(

nymphadora · 28/01/2011 14:39

Dd2 has been on & off this for nearly 2 years. Keep having breaks but she wets again. Wet bed last night as we forgot after a few weeks dry. It can be worse when she is stressed too.

bumpybecky · 28/01/2011 14:54

[whispers] we've had 12 days dry now without meds but we're not saying anything out loud!

Original poster
happyathome · 29/01/2011 00:46

thanks mungbeans,bumpybecky and nymphadora for telling me your stories.hope you all get it sorted.good luck!.
we did not get referred,but GP says the same about the week's break,which DD is having in the next fortnight.after that i asked him if we could try alarm,as don't want dd to be on meds for a long time,if they are not working reliably anyway.I was worried about side effects popping up.
always used pull ups,but did not realise Dry Nites were larger(for 8-15 yr olds),just thought they were different brand,but DD was leaking a lot out of pull ups and now rarely does and feels comfier in dry nites.Fed up of expense though,but better than endless washing(no tumble drier...nightmare!!).
even though i've never made a fuss,DD still feels like a 'baby' and it has dented her esteem a bit i thinkSad.we haven't ever done sleepovers,but want do soon...i hope this doesn't make her anxious,even though i've told her the 'tips' i've read about sleepovers?!hard to convince them they're not alone isn't it,when all they're friends never mention it,so they think they are dry?!
thanks again

OP posts:
nymphadora · 29/01/2011 06:41

Dd2 takes a nappy on sleepovers & doesit in thebathroom. Friends mums have helped hide the evidence.

MungBeans · 29/01/2011 09:19

The Dry Nites are on offer at Sainsbury's at the moment. I think they're £3.67 ish at the moment so I've stocked up. Asda often have them at £4 per pack but they're back up to £5 at the moment. I've stocked up from Sainsbury's! Grin

Butterbur · 29/01/2011 09:22

We only used desmopressin for DS2 for school trips/holidays etc, when a wet bed would be an embarrassment or inconvenience.

For the rest of the time, we just dealt with wet bedding - large drum washing machine, tumble drier and lots of cheap, thin duvets.

MungBeans · 29/01/2011 09:36

Glad that has worked for you Butterbur Smile

Unfortunately it wouldn't work for my DD. She wouldn't wet just once or twice - it would be four or five times a night. The consultant said that having that level of sleep disruption would not help matters and to stick to Dry Nites. And we were advised to try the Desmomelts as they don't work for everyone - and we didn't want to find out they wouldn't work for DD the week before her residential trip.

We're trying the alarm with the Desmomelts next. Fingers crossed.

Butterbur · 29/01/2011 10:06

Oh, poor you, Mungbeans. Sad

grumpypants · 29/01/2011 10:11

Poor you - my ds (8) has never been dry for longer than a cple months at a time - usually becomes dry during school holidays, we stop the desmomelts and then cple days before term starts it begins again. He also has mild SN so not sure if that is a link (ie school more stressful?) - i am resigned to it now, must buy brolly sheets, note to self. I don't use night pants as i have been told this encourages wetting, and i don't like the alarm idea, so kind of at an impasse. GP says he'll achieve it when he's ready; I'm going with that.

I do panic when one of the younger ones wets - they are all dry night time, so altho I can cope with ds, i just think it would be upsetting for me if the others did as well.

SkipToTheEnd · 29/01/2011 10:16

My DD 10 sll wets 4 or 5 times a week. She had the melts which never worked completely for us. They stopped her wetting 2 or 3 times a night but she still wet most nights.

Our biggest success was the alarm. After about 10 days she was dry for 4 months but then started wetting again when we moved and changed schools etc.

We are going to try the alarm again as she has a residential trip with school in March. The only problem is that her brother shares a room with her and the vibrating only never worked for her so if it really disturbs him we may have to re-think.

Good luck.

MungBeans · 29/01/2011 10:35

It's good to hear of someone who has had success with the alarm. Did you use desmomelts as well or just the alarm?

nymphadora · 29/01/2011 12:45

Grumpy-dd2 gets worse in holiday as she is more anxious out of routine!

Seems to depend on if it's a hormone problem or a deep sleeping problem

SkipToTheEnd · 29/01/2011 17:43

Mung - we just used the alarm. Didn't see the point in messing with chemicals etc if the melts weren't working.

Original poster
happyathome · 29/01/2011 23:26

srry to hear you have all struggled with this pesky problem,butterbur,grumpypants and SkipToTheEnd.All of this thread is really helpful/interesting and i hope it's giving you all support over bedwetting tooSmile.
I shall stock up too,thanks MungBeansWink.
Gp never said about not using Drynites and so i didn't know. Hard to keep up with the washing with no tumble drier and DS who soils his clothes for ENgland!!.
Glad of yur success story SkipToTheEnd with the alarm,as it gives me hope if we try it,thanks.
Never heard of desmomelts till this thread either.Just got the tablets from gp.
Went on website Patientuk.Gp says it's reliable.Put in Desmopressin and it has useful info.
good luck

OP posts:
Original poster
happyathome · 29/01/2011 23:28

oops.i meant sorryBlush

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