Anyone know anything about MCADD???

[bananastew]

A friends dd 2wks has been diagnosed with MCADD. Has anyone got any experience of this? Is it easily controlled? How long will they have to feed her through the night for? They're mostly worried about how to control it if shes ill. I know they'll get info from the hospital but I'm really hoping someone on here might have had personal experience of it.

Found this via google;

www.nhs.uk/Conditions/MCADD/Pages/Introduction.aspx

Looks like it will be a lifelong condition, but treatable. Your friend is very lucky, they've only been screening for it since last year.

Best wishes to your friend, I hope things settle down for her.

Thanks jancolls thats what I'd found too. I was really hoping to find someone with experience of it but as its pretty rare maybe even MN can't help!

Hi
I have 2 boys with Mcadd. the eldest diagnosed at 2 following the arrival of his brother. He was going throughout the night without feeds early on tho obviously we followed the guidelines with the youngest.
Generally it is easily managed - becomes difficult when they go off of their food - usually a precursor to an illness. Then whe have an emergency regime to follow - 2hourly prescribed drinks.
They are both very happy and normal little boys.
We are in Dorset. I will be more than happy to have contact with your friend is she feels thst it may help. There is also a support group which has a chat forum similar to this plus other info with regard to MCADD www.climb.org.uk.
hope this helps