Lightning Process in children unethical say charities

[checkagain]

A statement's been put out by two national ME charities saying that using children to test the efficacy of the Lightning Process is unethical. The ME Association and The Young ME Sufferers Trust statement is here:
tinyurl.com/3a4dufv

Thank you for sharing this. MY DD has just been diagnosed so I've been reading everything I can find about CFS/ME.

Sorry to hear about that. It's a horrible illness and the only reason people started to think it was all in the mind was a paper many years ago by two guys who looked at data from the Royal Free Hospital outbreak among nurses (in the fifties I think) and decided it was mass hysteria. Well, they were women weren't they?! I'm told that one of these two then went on to say Winter Vomiting Disease was mass hysteria as well - not! The virus causing that was discovered in the end.

A blogger just posted a letter from the department of health. Here is a quote and the link:

dancingwiththesandman.blogspot.com/2010/08/uk-blood-services-set-to-ban-mecfs.html

"In the absence of any infectious cause of CFS, people with this relapsing syndrome are currently excluded from donating blood while they feel unwell, in order to protect their own health. The UK Blood Services will shortly be amending its criteria to exclude such people from blood donation on a lifetime basis, bringing them in line with the practice of not accepting donations from people with other relapsing conditions. Whilst the purpose of this is to protect the donor's health from any possible harmful effects from donating blood, it will also minimise the likelihood that donations from people who have ever suffered from CFS could enter the blood supply. "

Study is out.

Retrovirus found in 87% of patients, 7% controls.

www.pnas.org/content/early/2010/08/16/1006901107.full.pdf