Any parents of children with severe excema have experience of treatment with Protopic?

[PussinJimmyChoos]

Am posting this for a friend as her DS (nearly 3) has very severe excema.

They have tried a lot of things and the latest is the Protopic ointment

However it seems to be getting worse before getting better - is this normal?

Also, they are seriously suffering sleep wise as he is waking in the night, scratching and crying, going back to sleep and then cycle starts again

They are going to see the nurse to learn how to bandage him so I guess this will help the night thing to some extent, but I thought I'd post here and see if can get any advice

They are doing the oat thing in the bath as a natural remedy also and have diprobase that they apply regularly in the day as well as cutting down on dairy and replacing milk with Goats milk etc

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have not seen protopic used with excema but have seen it used extensively in psoriasis although seems to only work on the face rather than rest of body. Protopic is an immune suppressant and is very effective in psoriasis because it is an auto immune disease-its use in excema may be similar simply because like steroid creams it can reduce inflammation which is an immuse response. In psoriasis I havent seen it get worse before it gets better but I would be surprised if it did tbh-has he recently stopped topical steroid treatment? Sometimes you can get a rebound effect as the immune system goes into overdrive after being dampened down-protopic doesnt seem to do this to the same extent when you stop it
Sounds like they need a review tbh.
HTH

Thanks for that

Any other experiences welcome also

Sorry, no experience of Protopic but has the child been tested for allergies? Ours is dairy & egg - and when we eliminated those his excema improved greatly. It's still there but nothing like it was.

Oooh that's a good point....they have cut dairy out to some extent but obv haven't considered allergies...will text her now - thanks!

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Have they tried wet wrapping him with Tubafast outfits? Can get these on prescription. I had to do it for two weeks at night for my 7 month old as he kept scratching. That and cutting out dairy, tomatoes & orange did the trick.

We gave a bath with dermol bath lotion, then covered him in Diprobase or dermol cream then used one damp wetwrap outfit & a dry one over that before bedtime. Give skin a chance to heal & get moisture.