piratecat here, hi, dd8 facing cortisone injections for the ongoing hip pain, any experience.

[piratecat]

Seeing orthopedic guy on wednesday. as the hip pain (illiotibal band problem) is just the same the next step will be injection into the greater trochanter. Physio hasn't helped becuase she can't do any of the stretches due to extreme pain. I am hoping that if we can get some of the inflammation down we may be able to work more on it. I am also going to ask the ortho if he is sure it's not bursitis of the hip. Her symptoms seem to point to that more, altho i do know treatment for both will be the jab. They have said that bursitis did not show up on the mri, but i have googled and other have said the same, but it ended up being a bursitis. She cn't even lie on her back whenit's bad and would hit the roof if oyu tried to touch the skin on the area.

DD is resigned to this fact now, and cannot livew like this much longer ( nor can I).Has anyone any experienc eof a child having has a similar procedure?

Hi pirate, no experience but will bump it up the thread for you. Good luck getting some more helpful responses.

hiya Sparkle, i replied to you on my old thread, but it fell off active convos.

How are things with you and ds? Has school finished for you? Dd hasn't been back since our hols. They went well, tho pain was still there, yet she managed to get some good time out in the pool. It waas crazy hot, 45 degrees next to my sunbed one day!!

I am taking dd into class in half an hour to say hi and bye, so that she feels like she is part of it somehow.

School have been lax, no contact about her next class/teacher/her report so i need to go in there and check her drawer to see if they have put any info in there. I am rather actually.

No experience, but best of luck for your dd and hope this really helps!

Not in a child, but my mum has had repeated injections into her hips (amongst other joints), and says that although it sounds awful, it really isn't that bad at all. And the pain relief is very quick as they usually combine the steroids with local anaesthetic

Not in a child but I have had two lots of injections into the top of my spine for a slipped disc and although it's not the world's most pleasant procedure (you have to get gowned up and it's done in theatre) it really has transformed my life. I was in constant pain and taking handfuls of painkillers 24/7 and now I'm not in any pain at all

hi, thanks.

I know they use a numbing cream, then a numbing jab, the appts guy said they have to with kids. i am so hoping it will help.

hi pirate, I hope you got into school on friday so dd got to say good bye and be a part of it. Shocking that you haven't had her report and bits and pieces, mind you not that surprising I guess given the attitude you have had from them in the past few months. I thought our school was doing so much better for my ds, and in fairness a couple of staff members are, but it is not being led from the top, some of the most shocking attitudes have come from the deputy head, and the head is retiring and according to the school secretary, the old head just can't be bothered anymore, not her problem.

A neighbour just popped round so I will fill you in ore in a bit.

Only had to go up to school once in the last week, and he is now off school until 8th September. I will have to go into school to see the new head before school starts for the kids, because it is not all ready yet, I am far from confident that it is safe for him to return.

I have been feeling really awful, really struggling. How have you been doing since you got back? I think you were very much where I am right now, before you went away.

How is dd feeling about the injections, have you even spoken to her yet about them?

hi, just logged on, i have just recovered from a night out, my first in many months.

It is so annoying that the schools just don't have the time. I did take her in for the last hour and the kids was over the moon to see her. She has been missed, so that's a blessing, it's the kids that matter.
have you anything nice to look forward to Sparkle, day out wise or something.
We had a lovely week away but got a bit flat on return, yet now the hols are officailly here I feel that a weight has lifted. You must feel similarly, it's the knowing there's no guilt pressure, cos now everyone if off school.

I think yu have prob told me but whereabouts in country are you? You would be most welcome to visit with us in Devon tho i have a tiny place!

DD has been forewarned about jabs, back when we got diagnosis, and she was very upset, Yet has now been agreeing iwth me that if they help then it's for the best. she will just have to be brave, and it will be another thing for us to cross off our list!

I am so glad to be able to have him with me, knowing he is safe, and not feeling guilty about it. Plus I'm not going to have to carry my mobile phone around with me for six weeks....it feels like such a luxury.

I haven't planned any trips out yet, the first two weeks of the hols are dominated by hospital appointments, after that I will try and get my head round what we can do. Thank you for your lovely offer, we are in Staffordshire so rather a long way fom you, but if you are ever travelling up the M6, we are only a 30 min drive off it!

Would it be worth seeing if you can take some music in with you when your dd has the injections, something you could both sing along with, or a book of story so you could help distract her, or even ask if you can get on the bed with her and cuddle her as she has it? She is so little really to face the possible pain for cortisone injections. My ds still has a meltdown when the ambulance drivers insist on taking her blood sugar levels with a finger prick test. (Why they feel the need to do this still escapes me, I have queried so many times and then they don't do it, but if I don't get to school in time the paramedics have already done it.)

Congrats on getting a night out....I am impressede and jealous!

Hello

I have snapping hip & get bursitis (the 2 are related due to my past hip/rotated femur problems.

Corticosteroid injections are FAB

Whe things get too much for me (not often thankfully as I now have some great exercises that work for me if I catch it in time) then I can get a jab and they REALLY help.

Hope they work for your DD too

miliways thanks. dd has huge flare ups of pain, do you get this? They happen at bed time mainly, and have been so for 3 months. She can't touch the area when the biggy happens, it's vile to watch.

Yes, if a bursitis develops it is horrendous. The GP diagnosed it by watching me leap off the bed when he prodded certain points - even though I have always had hip pain.

Also, if the "snapping" gets bad, the inflammation is terrible, but an injection can provide relief.

TBH, since I had 2 injections a couple of years ago, I have managed with very few flares and just stretches and the odd pill to sort it.

Oh, I also had "release" surgery to move the muscle (24 years ago!) but this was because I grew up with inverted femurs, inward rotating, and when these were surgically corrected the muscles etc were not moved, so as I grew they created the problem.

At least I know what caused mine - and if I had not had the original op I would have been in a wheelchair from age 10, so I really shouldn't moan (even though I do!) but I do sympathise with you if this has no real reason.

i am so convinced a bursitis has developed. Pixieonaleaf, i am so sorry, i missed your post completely.
Poor you and dd, how old is she? I would love to chat on here, it's good to reach out.

Milliways thankyou for sharing. DD is absolutely terrified about having to face these injections. She keeps asking me will it hurt like this mummy, or this, and i can't tell her. So the uncertainty is making her very anxious and she is back to wetting the bed again the past week.

I do hope i get to speak properly to the doctor tomorrow, he was very time short last time.

Hi

Don't know if this helps i had bursitis in my hip and had a cortisone injection in it last year, while it was a bit uncomfortable (not helped by my fear of needles) the relief was instant and amazing it was so good to be ablr to move my leg without pain.

If you have any other questions feel free to ask

sparklystar hi, did they numb it? was it done with guided ultrasound? what was the procedure

has it lasted as a painkiller for you, or cured it even?

how long did you suffer withit until they offered the injection?
thanks in advance!!

Hi Piratecat

They didn't numb me 1st but i'm sure they would if you asked, but did put local anesthtic in too.

It was guided with ultrasound they basically scanned my hip and she marked the point where she was going to do it with marker then prepared mixture (if thats the right word ??) inserted the needle then removed needle and applied pressure for a few mins then applied a dressing, told me to lay there for a few mins then as soon as i felt ready to get up.

I am pleased to say it has cured my right hip with just the one injection (they said it may take 2 to cure it) but not sure if i am getting it in the left one now.

I suffered with it for a while but was pregnant with DD and had SPD so wasn't sure if it was that, the refferal was pretty quick for a hospital

Sorry for the essay lol

essay is most welcomed!

i had spd in pg too, lasted about 4 yrs i totally sympathise.

the guy who does the ortho appts said they numb with cream, then numb with injection, then do the jab via ultrasound. said they have to with kids.

Sorry, not been on for a few days. Pirate did you manage to get any more information from the gp about the procedure?

Looks like the cortisone injections may have a good chance of working if you dd has the sane experience as the other posters. I have my fingers crossed.

Pixie if you are there, how is dd2 doing?

hiya, the ortho guy who we saw said it's just numbing cream then in with the injection which contains the anti inflamm and a anesthetic. bit arse over tit if u ask me, to not inject anesthetic first.

Hi Piratecat

Sorry only just got back to this, I think the reason they inject the anesthetic in with the cortisone is so i'ts longer lasting iyswim the cream should numb her skin enough for it to be done, i didn't get this option wish i had (huge needle phobia)

Hope all goes well and it helps your daughter.

Have you found out when they will do the injection yet ?

That sounds a bit clearer, so the numbing cream is just to take the edge off the first injection then the injected anaesthetic does the rest? Pirate - is the procedure completed as an outpatient or will she have to be in overnight afterwards?

The sun has finally come out today in Staffordshire, think you have been fairing better in Devon. Hope you are OK.

Yes i think thats how it works.

BUT

I have some very good but tentative news.

Since last tuesday, dd has been in no pain. I was loathe to mention it, or acknowledge it. On Tuesday morning, the day before the appt with the ortho, she woke saying, that when she'd woken in early hours she had turned in bed and heard 2 clicks on her hip. She said it felt weird, but not painful.

So i was just thinking, oh well thats another part of this. Yet byt tuesday night she had said a few times, mummy my hip feels so much better. I thought 'hmm' but really didn't take much notice of her as I never know what will happen form one day to the next. Wednesday came and I mentioned it to the ortho guy, who said, to just keep an eye. I was like 'yeah, i know it could go again 2morro'.

Yet, it is almost one week on and she has had 6 good days. I am praying to god this click has made something shift, it won't be the bone, it will be the tendons/ligaments.

It's very odd, and i am a bit tbh, but this is how it started, with a click.