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Finally they are going to do a scan - but do we want it now?

62 replies

KatyMac · 12/07/2010 13:30

There is going to be a big meeting to decide whether DD has a scan or not

I no longer know if it's relevant/appropriate

I am so unsure about everything

DD is better emotionally and may be seeing better on occasions

I don't know what to do

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DidEinsteinsMum · 12/07/2010 13:32

Would the scan not set your mind at rest as to whether physical vs emotional and double check there is nothing wrong that phyiscally causing the problem?

Sorry read most but not all your threads so if you have had this done already and i have missed this forgive the impertness of the question.

KatyMac · 12/07/2010 14:12

I just don't know

I guess so

(I don't think you are impertinent at all - no-one could keep up with the despair and anguish I have felt these last months - I realise I have been unbearable)

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werewolf · 12/07/2010 14:13

Is Dd in favour of having the scan, or doesn't she know about it?

Lougle · 12/07/2010 15:27

Katymac - have the scan. If there is nothing but a cute little brain, you have a definite 'closure' on the subject, and can await her full recovery.

If there is something organic causing her sight loss, you will never regret not looking for an answer.

DidEinsteinsMum · 12/07/2010 16:21

No not unbareable just suffering with the unknown.

Not kept up simply cos not kept up with mn in general life is mad here... scuttles off to chase more pead appts.

Galena · 12/07/2010 16:26

Good news that her sight may be improving!

Surely having the scan will not make things worse? I'm guessing it's not an intrusive procedure, just tedious and time-consuming.

How does DD feel about it? I wonder if you'd be best led by her - if she wants it then have it, if not then decline? However, I guess if you decline it and then things don't improve further you'd probably push to have it again... That might not go down too well.

You've not been unbearable at all - I've been amazed by your strength and patience!

minipie · 12/07/2010 16:27

I can't see the harm in it, even if it's only to rule out physical causes. Unless you think it would affect DD in a negative way?

TotalChaos · 12/07/2010 16:28

have it. if things don't continue to improve it would be a right palaver pushing for another one.

NorkyButNice · 12/07/2010 16:32

I think if you refuse it, having pushed for it for so long, they'll start raising questions about whether and why you're prolonging the process.

(I'm absolutely 100% NOT suggesting that this is what you're doing - I know how hard it is to have unanswered questions about medical issues).

You need to have the scan to put your minds at rest that there's nothing physical wrong - nothing has changed on that score has it?

minimu1 · 12/07/2010 16:47

Katymac I do not understand why you are hesitating?

In your other thread you were desperate to get the scan. Go and get it done, keep it low key for you daughter eg we are just checking things are the same as they have been type of conversation.

Then you will have confirmation of the diagnosis. Stop over thinking and get it done!

Sorry bossy moment but it has passed now!!

PixieOnaLeaf · 12/07/2010 16:59

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wb · 12/07/2010 17:05

Would you be able to accept the result? I mean, if they find nothing amiss would you then agree that the blindness has a psychological cause or are their other avenues you'd want to pursue?

wb · 12/07/2010 17:08

Sorry, not sure that came out right. What I mean is, would having the scan give you peace of mind?

KatyMac · 12/07/2010 18:10

What ever she had I believe (maybe mistakenly) that is passing

Therefore nothing would now show on the CT/MRI which would confirm their psychological diagnosis

God I am insane

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PixieOnaLeaf · 12/07/2010 18:29

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scurryfunge · 12/07/2010 18:33

Are you saying that you wouldn't believe the results of a scan then?

minipie · 12/07/2010 18:39

Oh I see

So you think a scan might appear to "prove" there is no physical issue

When in fact maybe there was but it has now gone away.

I do see the issue. But DD's sight is not back to normal so if there is a physical cause you'd expect it to still show up on a scan (albeit less than before). So I'd still say go for it.

KatyMac · 12/07/2010 21:30

I'm so confused

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Hassled · 12/07/2010 21:34

Katy, have the scan. Then at least you'll have resolved the whole psychological/physical issue. And I know you don't want to hear that it's either, but at least you'll know what's next. You have to find out, however horrible the answer will be.

So glad to hear things are sounding positive for DD.

KatyMac · 12/07/2010 22:27

Oh I hope so - fingers crossed

But what is the right thing? I guess the scan

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PixieOnaLeaf · 12/07/2010 22:42

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KatyMac · 12/07/2010 22:46

No - I really think whatever it was is passing; I feel it won't show anything because it (whatever it was) has gone/cured itself

They will say 'look there is nothing there' & if I say well that's because it got better by itself, I will look insane

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scurryfunge · 12/07/2010 22:49

You have wanted this scan and gone to a lot of effort to achieve it......if you don't have it then the professionals may question your reasons, so I would be very careful if I were you.

PixieOnaLeaf · 12/07/2010 22:51

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KatyMac · 12/07/2010 22:57

Well I am jumping the gun a bit - they are having a big meeting to discuss if DD has the scan(s)

I no longer feel any conviction that scans are right (this started before I knew about the meeting thingie)

I Just don't know anymore

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