Hi all,
I've been a lurker on these boards over the years and the advice that is given is always so helpful and supportive. Please beware this is a long one but any advice around how to navigate the world of medical professionals during pregnancy would be hugely appreciated.
I found out I am pregnant (only 4/5 weeks) a few days ago. I am 38 and this is the first and only time I have ever been pregnant. Myself and my partner live together and have been together almost 3 years.
I've had a rough time with all things sex related since my early adulthood. When I was 19, I was sexually assaulted and contracted an STD. Following this I developed a vulval pain syndrome which took over my life for many years. I developed a burning, stinging sensation in my vulval and vaginal area and was unable to have sex. I sought lots of help for this as it impacted on my life significantly. I wasn't able to enjoy going out with friends, dating, I could never wear jeans, sit for long periods of time, have baths and had to avoid all scented products. Every relationship I have had has ended as my appetite for sex was very low as I was always in pain (my fiancé of 4 years left me for someone else because of this condition). I even had to leave University as the pain was impacting significantly upon my mental health. As a result, I have always suffered with anxiety and have been medicated for this at varying levels since I was 19. I recall times when I thought it would be better to end my life. I currently take the lowest dose of anti anxiety medication I have ever taken (only 10mg) and this has been confirmed by my GP to be safe in pregnancy.
I never told anyone at the time about the assault but have been to counselling and sought support since. I believe that I have come to terms with (as much as is possible) what happened to me.
I have received varying levels of support over the years from medical professionals to address the vulval pain. I have been told by doctors that 'its all in your head', 'just use lubrication', 'most women struggle with pain so put up with it' and have developed a real distrust and phobia of medical professionals and settings. I have been dismissed so many times as a young woman who had suffered an extreme trauma by people you should be able to trust.
Through my own strength, I decided not to let this ruin my life and I researched, accessed counselling, attended acupuncture, hypnotherapy, changed my diet, addressed my mental health by accessing counselling and for the past 5 or so years I have been able to have an active sex life, enjoy life and have become the happiest person I have ever been.
To add complexity to the above, my closest friend also had an extremely traumatic birth about 5 years ago and is now incontinent and this has impacted upon her mental health, relationship, she has lost her job and has become a shadow of her former self. She has times where she does not want to live. This has been difficult to see. My auntie also had two still births when she delivered vaginally when I was a child and this stays in my mind to this date.
Three years ago I met the most fantastic human and we fell in love. I had decided that I didn't want to go through having a baby due to the stresses of birth and the impact this might have upon my condition and the fear of the long-term potential impacts/risks of vaginal birth. However, since meeting him, my desire to have a baby has increased and we fell pregnant. I had decided in my head, that if I were to fall pregnant, I would have a C Section. I didn't realise at the time that this is not something you can just request and this needs to be agreed.
So here I am, four/five weeks pregnant (which I know is very early days) having panic attacks about the idea of having to give birth vaginally. I feel very low and am not sleeping properly. My mental health has dipped significantly and I have (I feel awful admitting this) considered termination, as I do not want, under any circumstances for my mental wellbeing to be affected again. My life is the happiest it has ever been and I do not think I would be able to go through with a vaginal birth without it becoming dangerous for myself and baby. The biggest fear I have is that a traumatic vaginal birth may trigger the vulval pain or cause more/worse damage.
I suppose my questions are as follows:
- Has anyone got experience of asking for a maternal elective C Section, that could support in helping me to understand the ways in which to navigate difficult medical professionals who may challenge my request?
- Does my history sound like something they may give me permission to have a C section for? What are other people's experiences?
- I think it would be useful for me to access support from the peri-natal mental health team, does the midwife have to refer me to them? Would they be more likely to be sympathetic to my early experiences?
- I understand that in most circumstances it is a consultant that has to give permission, this is usually at 30 something weeks. I don't think I could continue with this pregnancy feeling this anxious if I had to wait that long for a decision. Is there a way of having this decision made earlier?
- Does anyone know where I am able to access information on maternal request c sections have been performed in the last few years in your chosen hospital? I have seen somewhere that hospitals are highlighted as red, amber, green to show how accepting they are of this. I would be willing to travel.
Also to add, I am very very petite woman with a very small pelvis. Whilst I accept that some teeny tiny women do give birth to big babies without problems, the reality is that I would struggle and that there may be complications.
I have been reading the messages on here from over the years about maternal elective C-Sections and have learnt a lot about the NICE guidelines and my rights. I understand that C sections are not a walk in the park and have their own associated risks. I have also accessed the birth rights website. I understand the processes to a degree and know that I need to let my midwife know at my booking in appointment that this is my preference. I am also aware that if I went in labour before, there is a risk that I would have to have a vaginal birth.
I know that I would be able to manage the difficult feelings I am having now if I knew early on in my pregnancy that I had a date for a C section so would like to get the ball rolling as soon as possible.
Thanks in advance for reading and your support.
Lucy x