Meet the Other Phone. Only the apps you allow.

Meet the Other Phone.
Only the apps you allow.

Buy now

Please or to access all these features

Childbirth

Share experiences and get support around labour, birth and recovery.

Tokophobia. Not coping.

8 replies

user1483291956 · 19/06/2017 23:48

So I have tokophobia. I've known for a long time. At the end of the year I spoke to a friend about it. She was lovely. I then spoke to my.gp, he was lovely, but not particularly helpful. Recently I decided to take a dive and speak to my partner, who whilsy not understanding, could not have been more loving and kind. I feel like I'm getting nowhere with my gp, the options seem to be all about changing my mind. But I don't want it changed. I would really like a caesarian. I was doing OK. But now I'm not. I feel on the verge of panic attacks constantly. I research, this makes me feel worse. I stop. This makes me feel worse. I dint know what to do. I'm at the stage where I just want this whole thing to end. Even if I were, by some miracle, to be promised a caesarian, what if there's a problem, what then? I've never felt so shitty, what do I do?

OP posts:
ExplodedCloud · 19/06/2017 23:58

Are you pregnant?
If you are, then you need to get your midwife to refer you to a sympathetic consultant to discuss your phobia and request for an elcs.
If you aren't pregnant then when you do get pregnant, flag this up at your booking in appointment.
Mental health is a reason foe elcs.

user1483291956 · 20/06/2017 00:12

Hi exploded cloud. Thankyou for talking to me. No, I'm not pregnant. I would love to be a parent, so would my partner. I just had a panic attack, first in a long while, always about this. Feel like just quitting, no one medical seems to understand.

OP posts:
user1483291956 · 20/06/2017 00:14

Sorry, I didn't make myself clear really, I simply cannot even consider pregnancy ( no matter how much I'd love a child) without medical reassurance.

OP posts:
PerspicaciaTick · 20/06/2017 00:26

GPs are really not experts at anything connected with pregnancy or childbirth as it is the midwives and consultants that look after women.
Would it help to ask the GP to refer you to a mental health professional who could give you a formal diagnosis of tokophobia, so it is in place when you discuss your future plans.

There are NICE guidelines covering how to care for women with various issues, including tokophobia, which focus on patient-centred care. It might be worth while getting your partner to read through them and share the relevant information with you (it covers a lot of situations and you might find it a bit too detailed).

www.nice.org.uk/guidance/cg192/chapter/Key-priorities-for-implementation

mimiholls · 20/06/2017 16:31

Your gp will not really be experienced in this area and since you're not pregnant there's no obvious place for them to refer you. If you were pregnant, your midwife would refer you to see a consultant about elcs. It may be worth contacting your hospital to ask their policy on elcs for tokophobia and see if you can get anything in writing, there should also be a perinatal mental health team there who deal with this kind of thing. Any consultant should grant you a cs on mental health grounds though its a scary prospect to have to go through getting that agreed when youre already pregnant. Is there any way you could afford to go private or take out insurance that would cover this in advance? You shouldnt need it but it may give you peace of mind that you know there's a plan b.

RedToothBrush · 23/06/2017 15:37

Don't write off these avenues though. Can I ask why you have a problem with them at the moment?

What exactly is your fear and what exactly is your reason for a CS?

Fear comes in all shapes and forms and the better you can break it down and articulate it to someone else the better your chance on being able to get a CS.

If you can't answer the question, you will not get further in the system, because the system is about establishing these and then finding solutions to those fears.

They need to establish whether your expectations and reasons are correct and to inform you if you are not.

This is why I say, not to immediately write off the avenues you are being offered. They may help you articulate this in a way that is more constructive.

In saying you don't want to engage with these avenues, you should be able to articulate why you don't want to engage and why you should be able to bypass them.

I know this isn't an easy thing to do and isn't necessarily what you want to hear, but it comes back to establishing the answer to the question 'why?', which is what Health Care Professionals want to hear and want to answer.

You can do this by writing it all down if you don't feel you can talk about it easily or feel you can't stand up to their scrutiny. Pre-empt what you fear they will do/say.

Make it clear the extent to which this is making you anxious and is affecting your mental health. If the thought of going through the process is part of that, make a note of that and explain that.

The more information you can give, the more it puts the emphasis on others to help you in a way that suits you best.

You also need to give your partner a great big kick up the backside with this. If you can't fully explain it to them, and get them on board to be able to advocate for you when you feel overwhelmed by the situation then you have lost your best ally.

However, I do think its worth taking up the offers you have so far, to demonstrate you are willing to engage. You do not have to change your mind in doing this. Its a ball ache but it does show you are taking advice seriously. I would go prepared to anything you do go, armed with everything you think and feel written down.

This is all about building a case about why the most appropriate care for you is a CS. You have a right to this. You don't have a right to a CS. Learn the difference and it will help you navigate the system.

The NICE guidelines on mental health and pregnancy are framed in a way that you are entitled to help and support about any concerns and worries BEFORE you conceive. You can in theory use these in conjunction with the NICE guidelines on CS which do allow a CS on the grounds of mental health.

But this does rest on you doing your homework and understanding these guidelines and what your rights are, and what they are not.

There is another approach you can take with this, and that is to try and find a nearby hospital which has good maternal mental health clinics within the maternity department. This is easier said that done and involves trawling through crappy hospital websites to find out whether they have these facilities. You are looking for some sort of maternity mental health midwife or consultant.

You can write to them and try and get a self referral or try and go though your GP. However you might well find this might be who your GP is trying to refer you to anyway.

If you can find somewhere that advocates women centred care rather than boasts about their low CS rate you are generally on the right track.

I have been through this process. I looked at private alternatives and found that they were simply not possible as they were unaffordable for me and I don't live in the right place in the country. (There are very few places that offer private maternity).

In the end I did get a referral through my GP after finding somewhere appropriate myself as my GP just didn't have the knowledge and said quite bluntly that I was better informed than her and that she would simply support me in going down that route. But I could have self referred.

I will say this for my experience: whilst I was never going to change my mind, I can see how the support I was given would help other women with different fears be able to address them and go on to have a natural birth, because they simply LISTENED to what you said. That surprised me, as I had been convinced that the process would be about getting me to change my mind. It wasn't.

The whole process of wanting a child, doing my research, seeing someone, getting support, getting a care plan in place and then getting pregnant was a lengthy one. The part where I was trying to articulate my fear took several years to get to grips with - it took a long time to get through the 'why' of wanting a CS. Its not an easy process.

From what you've said, you sound still in the early part of that. When I did it, I was very much alone and I do think things have changed and moved on since then. You might find that these services are exactly the thing I needed but they didn't exist.

If you have time on your side, take it. This isn't a race to get pregnant. Your needs are different to other people's but they are not unique either. Work through it as you feel able.

mayhew · 23/06/2017 16:36

As a midwife I have assisted several women with tokophobia. We have perinatal mental health services now which provides specialist care.
They were all different people didn't all have the same management. All had the option of elective caesarean for psychological reasons.

Weathergirl1 · 24/06/2017 21:10

User, I hope you don't mind me jumping in, but I feel the same - so you're not alone. I've been lurking here on Mumsnet for a few years now and I've always found RedToothBrush's posts to be thoroughly researched.

I have general anxiety disorder and I've not specifically discussed the tokophobia with a GP yet, as the first priority was to get support for the general stuff first, especially as I was also having work-related issues at the time. I mentioned it in passing and my GP said fairly that if I didn't want children then it wasn't an issue I needed to deal with... but that's the problem. I've always been rather indifferent to children (my mother was never gushy over babies as I was growing up) and as an only myself I do feel awkward around other people's children. But I don't know if my feelings of not wanting one are just symptomatic of the fear I have (we're both pretty clear that if we couldn't have a child for any reason then we wouldn't try IVF).

And we're now 36/37 and really need to make a decision soon. But like you User there's no way I could even contemplate putting myself in the position of being pregnant without knowing the situation in advance.

New posts on this thread. Refresh page
Swipe left for the next trending thread