Hi Abbey. I had anti-E antibodies in my second and third pregnancies. Anti-E is similar to anti-c, though rare and less likely to cause HFDN.
In my second pregnancy, the levels were low and remained that way so there was very little extra intervention.
In my third pregnancy, the levels were high (1:32 - it's measured as a titre) at the first check, and fluctuated between 1:32 and 1:256 (I think - it's been a long time!). I was referred to Foetal Medicine at 24 weeks, and had quite a lot of extra scans to look at blood flow through the baby's cerebral artery (as this can show if the baby is becoming anaemic in utero). Although the baby didn't, the consultants were very reassuring that they could and would take action if there was any problem (i.e. they would do a blood transfusion in utero).
I was induced at exactly 40 weeks, as they wanted her out, and DD3 was born weighing 8lb 11oz. She did develop HDN, and was put into SCBU with lights all round her at 11 hours old. She subsequently went bright orange and spent 4 days under the lights. Yes, it was scary but she had the very best of care. It was difficult because the doctors wanted to severly limit her time out of the lights to begin with, so I could not feed her or hold her much (I expressed for her, and she had a nasogastric tube as she was too sleepy to suck much anyway). She was released from SCBU at 5 days old and we went home 2 days later. She has not suffered any ill-consequences from it and is now a healthy stroppy 7-yo.
I remember going to the GP for her 6 week check and he was hugely interested in her condition, as he hadn't heard of it before . I'm a medical scientist so ended up sending him the scientific literature on it as he wanted to learn more!
Oh, and one lat thing - we did establish breastfeeding after her HDN was under control, and I fed her until she was 16 months old.
Please let me know if there's anything you want to ask, and I'll do my best! Good luck.