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Childbirth

Share experiences and get support around labour, birth and recovery.

Been diagnosed with blood clotting disorder :(

13 replies

jenrendo · 19/03/2013 17:41

I am most sad. Just been diagnosed with Von Willebrands Disease and am 20 weeks pregnant with DC2. Anyone out there got it and had a straightforward birth that wasn't a c-section under GA? DC1 was born vaginally with an episiotomy and spinal, but now I have this I'm not allowed epidurals so will either have to go for it naturally or go to sleep and miss DC2 being born. Would love to hear of anyone who has been in a similar situation :)

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Muser · 20/03/2013 12:39

Not me, but my SIL has a blood clotting issue, I am not exactly sure what kind. But with both her pregnancies she had to have daily injections and wear some very glamourous compression stockings. She has had two successful births without epidural. She used a tens machine in early labour, gas and air and managed really well.

Thumbwitch · 20/03/2013 12:47

Ahhh. I have a friend who has von Willebrand's disease and she was due to have a natural birth, but her DS had other ideas and was unstable lie, so had to be delivered by CS under GA.

She was very panicky about the whole birth thing, for a number of reasons, not least that her sister had had to have an emCS and she didn't want to be in that position - couldn't be allowed to be in that position - so she had many chats with her consultant obstetrician while pregnant. They did want her to have a natural birth, to try and avoid the need for blood-clotting managment, and if her DS had been head down where he should have been that is what she would have had. BUT they had everything in her notes and in place to give her the necessary treatment if a CS became essential.

As it turned out, the CS was fairly straightforward - she was given desmopressin (helps reduce the bleeding) prior to the CS, but yes, had to have the GA, albeit as light a dose as they could manage. Even so, her DS was pretty dopey for a few days - I remember visiting her in hospital and he slept the whole time; but when she came home after about a week, I think it was, he suddenly started to cry more and she was a little bewildered as to why - I believe it was that the anaesthetic had finally worn off and he was behaving as any other baby would!

Muser's SIL would have a similar condition to that which I have, factor V Leiden thrombophilia, which is the opposite problem, hence needing daily injections of anti-coagulant and compression stockings to prevent clots. This is not relevant to vWD. :)

Muser · 20/03/2013 12:52

Ah so I am no help at all, except for bumping this up a bit!

Thumbwitch · 20/03/2013 13:00

Not no help, Muser - good to have clarification of the opposite side of things, I think! :)

jenrendo · 21/03/2013 01:03

Thanks for your replies. I have the added complication of currently living abroad but returning in July, 6 weeks before the due date, so having to set up consultant appointments etc from over here. My dad is also a GP and is filling me with worry because he is worrying. My sister is due 6 weeks before me and also has vWD, the poor man!! He may have to retire early Grin I think that I'm not really worrying about the birth but more about not seeing DC being born potentially (stupid I know) and also DH missing out on that too. Of course, we will have a lifetime of gazing at him/her once he/she is out safely :) Thumbwitch it is interesting that the docs were hoping your friend could have a natural labour. It keeps me hopeful!

WIth DC1 I actually had a vaginal birth with an episiotomy, spinal given after 6 hours of pushing Shock but of course, the doctors say now that they know I have this disorder and it's written down they have to deal with it. I was so lucky to see DS coming out, so maybe i should just be happy with at least having that experience!

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mayhew · 21/03/2013 08:16

If you gave birth vaginally last time, there is a 90% likelihood that you will do so again. Your body is a good learner which is why 2nd babies usually come out so much more easily. a spinal or epidural is unlikely to be needed. You get to the point where you want it, and lo, a baby!

i understand this is no comfort if you end up needing a cs. Once you are booked into your unit, ask to speak to one of the supervisors of midwives. Tell them about your fear of being "disconnected" from the birth. Ask what they can do to help you, such as skin-to-skin even if half asleep, with midwifery support. Ask if the midwife can take lots of photos of the baby and both of you together as soon as born so you can visualise what you missed.

jenrendo · 21/03/2013 18:17

Mayhew thanks! It is the skin to skin I'm sad about. When DS came out he was immediately popped down into my gown, all slippery. I loved it :) I was even wondering if they would let DH do this as soon as possible after the birth if I was still asleep?

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Muser · 21/03/2013 18:29

You can definitely request your DH does the skin to skin if you can't. I had that in my birth plan in the event of unforeseen complications.

jenrendo · 21/03/2013 19:09

Great I will do that then! It is a pain because I am in Canada just now so can't really go through my birth plan in the UK until 6 weeks before I'm due. I am spending far too much time over thinking things!

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Norem · 21/03/2013 20:58

Hi jenrendo I am a midwife and have recently looked after a lady with Von willebrands. She was fine, had a normal labour and birth, she was prescribed anti clot injections for 6 weeks after birth but was otherwise pretty normal.
2 nd labours are usually smoother and faster than first.
Good luck.

jenrendo · 21/03/2013 23:35

Aw thanks Norem. I'm starting to feel much more positive. Can I just ask, did there have to be a doctor there at the birth for her or was it only midwives? I was in the midwife-led unit for my last labour and much preferred it :) And I don't mean 'only' midwives in a derrogatory sense :)

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Thumbwitch · 22/03/2013 01:01

Norem - are you absolutely sure that it was anticoagulant injections the lady you looked after was given? And if it was, are you absolutely sure that she had von Willebrands? Because the risk after birth from vWD is postpartum haemorrhage, not clot, and giving her anti-coagulants would significantly increase that risk.
If it was exactly as you say then a) I'm shocked and b) she was bloody lucky not to have a PPH! Shock

Jenrendo - this is American but contains a lot of valuable information if you like reading scientific stuff. :) Things would be very similar in the UK.

And I would strongly recommend you get a referral to a haematology consultant whenever you do get back to the UK for management.

jenrendo · 22/03/2013 15:10

Thanks Thumb things are in hand on that end. My dad has contacts and is getting me referred asap to a hospital where there is a haematologist with and interest in pregnancy - bonus! Off to read that link :)

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