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Any advise, does my baby have early warning signs of neurological or mental illness

47 replies

MumQ8 · 16/04/2025 16:22

Hi all,

I'll try keep this brief but it's still a long read, not sure if this is the best section for this.
I'm worried about my baby boy, he is 3 months and 17 days old.
I do understand there are a lot of changes that happen around three months. He was a happy newborn, but around the late two to three months he has drastically changed.
And I'm worried it's more of a neurological or mental illness, early warning signs.
I'm wondering if anyone has had experience of this, and has maybe even older kids now diagnosed that showed signs as a baby.

For extra context I am epileptic and have a lot of family history on both sides, of many different neurological and mental illness. I also got very bad sepsis late in pregnancy; had a burst appendix and got sent home being told its pregency pains. And landed up back in hospital with my baby in distress. Was then given antibiotics nessary but unsafe for babies for two weeks in hospital. So that could have effected things. I then had an early emergency c section later on after the appendix. He was breech at the time, and there was a problem with him breathing when first born. He was taken away, and I only got to see my baby later. So those are factors that could maybe have caused something.

He has had bad reflux that began after a month I think, the Dr's are treating it. And it definitely improved he no longer projectile vomits. Other then that the Dr believes he is fine. But I don't feel like he is, and I'm going tomorrow for a third opinion now.

His moro reflex has become way more extreme, I've needed to put things by the changing mat for him to hold onto. Everything startles him worse.

He has become so sensitive to sensory input, sounds, light etc he can scream being outdoors, and relax in a dim room. I tried a baby group and he cried the whole time, I gave up after two sessions as it made him even more unhappy.
He won't sleep in a parm or car ride anymore, when we have gone out he will fight sleep for hours, eyes going blood shot he cannot be soothed to sleep. Only in a dark or dim room swaying and walking with him, and that can be a process.
Other days however he will oversleep, and trying to wake him to engage with him, has only resulted in him being awake and screaming, that full time before I can sooth him back to sleep again. I can't put him down or it makes it worse, I have to hold him.

He doesn't like his gym anymore, he cries if put into it. Before he cried if he didn't go in. He needs a single toy, and a simple space now. He stopped babbling, where's he used to babble nonstop (I understand that can be a developmental pause). He still can't hold his head up, and struggles in tummy time, they short sessions, which he can only tolerate on the chest and ball.

And my baby has become extremely sad a lot of the time. He will wake up screaming, cry and scream worse then getting a vaccine. He can cry so badly at times he can hardly breath. He can't be soothed easily, and can take ages to sooth and I've tried everything google could suggest.

And yes he is fed, cleaned, comfy, I have a Thermometer to check temperature accurately, there is no hair tangled around his toes, or rash, Etc etc etc. I honestly got to the point of changing the colours in the room, changing music, white noise sound, sang different songs, even decided maybe he didn't like Paddington stories anymore. I've got to the point where yesterday I was standing on one leg in hopes it would help, then realising that's just ridiculous.

Does anyone have any advise? Gone though something similar? Have suggestions of anything else it can be?
I'm a first time mom, and I'm heartbroken for my baby, I just want to make him smile more, I want to make his life better.

Thanks so much.

OP posts:
MumQ8 · 18/04/2025 12:12

@TheShiningCarpet thanks so much, I think that's probably very good advice.

OP posts:
MumQ8 · 18/04/2025 12:14

@ScaryM0nster thanks so much for the advice. Maybe thats a factor then. I'll definitely try the dairy free for two weeks. I'll start after Easter hehe need my chocolate fix. Thanks I actually didn't think of that, I'll look online.

OP posts:
CagneyNYPD1 · 18/04/2025 14:34

Your post reminded me of the first few months with DS. It was tough, really tough. Great first few weeks and then bam! cry, cry, cry. Both me and him.

He appeared to be fussy for no reason. One minute wanted cuddles, next minute wanted to be in the playmate. I was constantly trying to second guess his needs and wants. No rhyme or reason.

At 16 weeks it all suddenly changed again. He started pulling himself up on to his hands and knees. By 18 weeks he was properly crawling. By 20 weeks he was pulling himself up on the furniture and cruising along. He was just a very active baby who needed to get going. He is now a strapping, over 6ft 17 year old.

Definitely keep exploring the reflux/colic route. And yes to cutting out dairy. It will get better and you are doing great @MumQ8

MaryPoppinsAtAll · 18/04/2025 14:46

Hi OP,
I'm really sorry you are struggling with this. Sorry I didn't have time to read even all your comments, but my DS was somewhat like this and he got much better when I cut wheat, dairy and everything with supplemental vitamins out of his diet.

I later figured out that he could tolerate readybrek and that meant that he could have that for vitamins every day.

But generally I would be looking carefully at food intolerance possibilities. If you are breastfeeding, that means cutting stuff out of your own diet too.

It's a good idea to be really clear with people about how hard it is. I wasn't and I eventually got really ill from exhaustion and then people blamed me for the state my son was in and the state of my own health too. If you are telling people there is a problem make sure to spell it out for them. People can be awful at assuming the baby's mum is at fault, when in fact her constant work is all that's holding the ship together.

Good luck.

Flowers
badwolf82 · 19/04/2025 19:05

Just wanted to add, if you cut dairy out then please make sure you take a calcium supplement and/or drink plant milks that are calcium fortified. You really need the extra calcium when you are breastfeeding.

Also, I wanted to add that my baby responded much better to wave sounds than white noise. I think the more random nature of it is better for him. He has this video (just audio) on loop all night (we have an old second hand phone and a Bluetooth speaker for his room):

- YouTube

Enjoy the videos and music that you love, upload original content and share it all with friends, family and the world on YouTube.

https://youtu.be/6jW4CZ-AoOg?si=lVjOywip7MQ6BLMY

badwolf82 · 19/04/2025 19:13

@HRF2022

I had exactly the same experience with trying to meet up with other parents with our babies. I had this grand fantasy about maternity leave that I would meet up with other moms and drink coffee and have a sleepy breastfeeding baby and it would all be sweet motherhood and apple pie.

Reality was that my baby would absolutely not sleep in public and would not latch no matter what we did, so I spent my maternity leave (only 4 months where I live) mostly in a dark room trying to get baby to sleep or attached to a breast pump, oh and it was also a pouring rainy winter.

It’s always helpful to meet others who have had a similar experience!

kc92 · 19/04/2025 19:25

HRF2022 · 16/04/2025 16:45

Hello, I wanted to reply as what you have written has reminded me so much of the early days with my little girl. She was pretty content for the first few weeks, then 'woke up to the world' around 10 weeks.

I found her so difficult as a baby. Hated the buggy and car seat and would just scream. I used to take her to baby sensory classes and always left early as she hated them. Slept relatively well in the night, but in the day would only sleep on me in a sling, which involved a lot of swaying around to music and covering her eyes to get her to sleep. If I didn't do this she would stay awake and get completely overtired. She absolutely hated tummy time and any overstimulating toys.

We powered through, she is now 3 and an absolute delight. She is still incredibly emotional, and doesn't like discomfort (eg if she falls over and slightly hurts herself she will react very strongly) but it now makes more sense to me why she was the way she was as a baby. There's absolutely nothing wrong with her developmentally, she's just a very emotional person.

I do suspect an element of undiagnosed reflux or similar which made her hate her buggy so much (once she was old enough to sit up, she became much more tolerant of it) It sounds like you are already exploring this route.

I just wanted to say it can be completely normal for some babies to be this way and for nothing to be wrong. I found it so isolating in the early months as I would watch these babies just lying in their buggies whilst their mum's drank coffee, and I would be the one walking up and down the road outside the cafe desperately trying to get them to sleep!

Hold on in there, it does get better x

I could have written this about my eldest son. Also now three, and the smartest, most adventurous child. He was a koala baby, and had to be constantly rocked and held. Didn't sleep, didn't take a dodie, didn't take a bottle, didn't really like other people besides me, hated tummy time, and screamed if he was in the car seat or pram.

I suspect now he had silent reflux contributing. I was fobbed off by every healthcare professional I saw because he was gaining weight, and because he wasn't doing "purple crying". Though he only didn't cry non stop because I was rocking him non stop.

It does get better, hang in there. Once he started being able to roll / crawl independently it was dreamy. And it is nothing you are doing, their personalities can come in forceful! My youngest is the polar opposite.

I think a PP has mentioned this but it also could be teeth. My eldest got them two days before turning three months!

Things that helped me:

  • a sling to keep my sanity
  • keeping him to a routine. I followed wake windows religiously or he would be too overtired to settle, and tried to have the same wake / bedtime routine daily
  • getting outside in the sunshine as soon as we woke up. Fresh air regulated both of us.
  • running the tap - for some reason he just loved looking at and the sound of water!
  • changing to the seat part of the pram early
  • keeping an eye on developmental leaps, and bracing myself when they were due
  • protecting my sanity by making sure I had me time every week. Hard at first but my DH needed to figure out parenthood without me holding his hand too!
  • therapy because it's really hard in the trenches!!
MumQ8 · 20/04/2025 07:44

@CagneyNYPD1 thanks so much for sharing. It really helps hearing these stories. And being able to relate to others. I appreciate the encouragement.

OP posts:
MumQ8 · 20/04/2025 07:46

@MaryPoppinsAtAll thanks so much for the suggestions, I'll definitely also watch out for other intolerance. Thanks for sharing and for the advice, I'm sorry you went though that. I definitely have to be better at asking for help, as a pose to carrying it all.

OP posts:
MumQ8 · 20/04/2025 07:48

@badwolf82 thanks so much I'll order supplement. Appreciate the tip, tried the wave, and he definitely likes it more. And so do I heh was going mad from hearing thr white noise.

OP posts:
MumQ8 · 20/04/2025 07:51

@kc92 thanks so much for sharing, I really appreciate it. Sounds like my little one a lot. Thanks for all the suggestions I'll definitely try.

OP posts:
MumofSpud · 20/04/2025 08:19

my DS was your baby - screaming / crying / not sleeping we had every investigation going and was told he’ll grow out of it and he did (when he was about 4 years old!)
He’ll be 27 soon!
Now I think I’d look at what he was eating / drinking and see if that was worth changing.
Isn’t it an ‘old wives saying’ that a ‘terrible’ baby is an easy teenager? Well my DS was the easiest teen ever and DD, who was a textbook baby - smiley, sleeping /eating on schedule, was horrendous from about 11 years old!
I often wonder if DS sensed my fear / nerves (I had no clue what I was doing), which didn’t help.

IbizaToTheNorfolkBroads · 20/04/2025 09:58

This was DD!!

She was the world's most discontent baby! She grew into a much happier, intelligent, healthy child. Difficult preteen patch. Delightful, clever, curious, healthy teenager.

She had dreadful colic, teethed early , didn't sleep for more than 3 hours until she was 3.5, and walked at 10 months. I think she just hated being a baby!

ExecutiveRubber · 23/04/2025 11:18

Longhotsummers · 17/04/2025 15:21

Have you considered your DC having cranial osteopathy? I’ve seen it having incredible effects on babies who are unsettled etc.

This helped a lot with our tongue-tied, refluxy DC.

Haveyou also considered support for your anxiety? Society does put the fear of God into mums and it can be a real help to talk to someone who can help you sort your stuff from stuff that is of genuine concern.

MumQ8 · 23/04/2025 14:58

@MumofSpud thanks for sharing, really ia comforting. Good too know your time line.

OP posts:
MumQ8 · 23/04/2025 15:00

@ExecutiveRubberthanks appreciate your sharing. I think I'll definitely speak to the health visitor about getting mental support.

OP posts:
Cyclingandrunning · 23/04/2025 15:24

I want to reach out too and say - this was my dd1!

She cried all the time. She always has a serious worried look all the time. She never napped more than 15-20 mins, was a nightmare to get off to sleep at night and would then also be up at 5am. This was after her waking up numerous times in the night too.

She wouldn't be put down at all, really cry if she went in a buggy or a car sear. I just spend days/weeks bouncing an overtired miserable baby on my hip/knee/chest. I couldn't go anywhere without her screaming.

I was a broken woman.... 😟

She is now 18 and absolutely lovely. Beautiful, chatty and no bother whatsoever. I can't believe she turned out like she did as I'm was positive there was something seriously wrong with her at the time.

Cyclingandrunning · 23/04/2025 15:36

For advice, found a wrap sling amazing (unfortunately I was on dd2 when I discovered it).

Trying to get a "routine" was the wrong option for me - she completely would not do it and this wasn't great for my mental health at the time. Trying to get her into a routine made things 100+ times more difficult.

So, using a wrap sling like this.

https://youtube.com/shorts/5Z5cR7J_nMc?si=6YVua6AYVNoxaPIE

And going outside for a walk, even if it's just around the block - just for some sunlight and fresh air.

Giving baby to someone else to look after for short periods as you will need to get some respite from the madness that is caring for a baby going through this stage.

Huge hugs, I PROMISE it will get better/easier.

Before you continue to YouTube

https://youtube.com/shorts/5Z5cR7J_nMc?si=6YVua6AYVNoxaPIE

MumQ8 · 23/04/2025 17:35

@Cyclingandrunning thanks so much for taking the time to share your story, and I really appreciate the encouragement. It means a lot to me. I'm so glad your DD is grown up and happy. My DS is a lot.like that, I've completely given up going out unless it's a Dr, just not worth how unhappy he gets. I've also struggled with a routine too, just impossible to get it right something always comes up, and it becomes ruined for the day. The best I do is set an alarm when he wakes to try get him to sleep before the overtired hits. Which is also a hit and miss depending on him at the time.
Thanks just happy to know this isn't a bad omen, and I'll gladly get though this stage. Was so worried as his crying is heartbreaking. And all I want is a healthy and hopeful soon happy boy.

OP posts:
Cyclingandrunning · 23/04/2025 17:48

@MumQ8 I'm having flashbacks now of how bad it was 😂

On refection, I sometimes did think as she was my first, I probably overstimulated her with my constant chatting to her etc. For my 2nd and 3rd child, I just popped them in the sling and just ignored them (not intentionally, just I busy with the older children). I barely had a squeak out of them, they just seemed happier more content babies. Perhaps, keeping them close in a sling and ignoring them is actually the secret! 🤣

Boxfreshrussell · 23/04/2025 17:56

It is so hard and it sounds like you had a very tough run up to the birth too. Lots of us have been in your very position and it truly feels never ending. Have no other advice than has already been given but just wanted to send you my best wishes. It gets easier and then they hit the teenage years 😂 You’re doing a great job

mathanxiety · 23/04/2025 19:37

Have a look at The Fussy Baby Book, by William and Martha Sears.

I had one who was a high decibel screecher. Only slept for micro naps and woke at the drop of a pin. Didn't sleep through the night until age 2.5. A well fed, comfortable, held-all-the-time baby, no teething, rashes, reflux... but constantly either crying inconsolably or on the verge of a crying jag. Perfectly fine now, 27 years later.

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