I was just wondering if anyone has had similar experiences or could offer any guidance, please.
Our daughter has just turned 10, we are awaiting an assessment for Autism. We are two and a half years into this now. She has always displayed controlling behaviours and struggled with her anger, experiencing numerous outbursts daily. The last year has been extremely difficult and distressing. She has masked at school for so long and just could not continue this any longer. It was as though she experienced a mental break down. She had previously displayed OCD type behaviours and rituals, however these intensified and took over her entire life. She started handwashing more frequently, having more rituals than previous and even added to these when they were verbal type. A touch game like tig was played at school that just sent her over the edge. That evening she wasn't the same child. She believed she had the touch, our entire household had it and we would all die or the devil would come if we didn't get rid if it. She was hysterical screaming I'm stuck we are all stuck. It was absolutely heartbreaking. I rang the Crisis team who were no help at all to be honest, these behaviours continued and intensified to the point where she was tying to get knifes to stab herself saying she is going to kill herself. We had sharps out of reach and continued to do our best to reassure her and make her feel safe. I contacted th crisis team numerous times only to be told the same thing and left to basically get on with it. I took her A and E as she was full on attacking me, if I wasn't on the right number step coming down the stairs she would be hurting me screaming, if my husband ( her dad).ll or my mum made me a drink she would be screaming that I couldn't drink it trying to get it. When we attended A and E she was laying across me saying wee wee and just wasn't herself, I was absolutely heartbroken everyone was staring at our beautiful little girl. Yet again we got sent home to get on with it. I have chased up an assessment date for the autism only to be told that because it isn't a developmental regression they will not see her any sooner. We were paying for private therapy until just recently when I had to quit my job as I can't get her into school, she is now on a part time timetable and we have just before Christmas been informed that she has been accepted for an EHCP. This was a huge relief to finally get accepted for some support for her. Over these Christmas holidays she has struggled so much, saying she doesn't want to be here anymore, she believed I was possessed and was hysterical, screaming that I had a spirit inside me. The OCD traits have got so much worse, she won't let her sisters bedding touch her , if you accidently point at her or she feels like your hand is pointing at her she believes she is stuck, you can't say freeze, pause or any phrases similar as she goes into an meltdown stating that she is stuck.
I am so sorry for my long post, I just would love to see if there are any parent's that have experienced any similarities or any individuals that have the same struggles themselves and how they have managed it.
Thanks in advance