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Emetaphobia ruining our lives - 8 year old won't eat

64 replies

Lubielou79 · 25/08/2024 20:42

My daughter is suffering with a fear of vomit - emetaphobia

It started after she had an awful vomiting bug last January. It has progressed to the extent that she is often refusing food for fear of being sick.

She was already small and underweight before this but is so skinny now. At 8.5 years she's 16kg and 118cm. She has low BMI and I've been told to increase it but it's impossible.

She's had terrible tantrums and complained last week she couldn't see. I managed to get her to have something sweet and she came round and vision improved. She said it was large floaty things blocking her vision.

We've had a urgent camhs referral done but the wait is 52 weeks. I tried a different route into psychology via our endocrinologyist (already being seen at children's for poor height and weight).. the letter came back that psychology department is over subscribed and they can't give a date

We have dietics next month so I'm keeping a food diary, maybe they can force something?

I'm also paying privately for her to see a psychologist once a fortnight but the eating situation is getting worse.

I'm wondering if anyone else is in the same situation or has any advice. I feel really helpless

Thanks so much

OP posts:
KenAdam · 25/08/2024 20:45

Hi OP so sorry to hear your family are struggling.

I can relate all too well. Two of my daughters suffer with this. Both currently not in school, younger daughter will only eat with fresh air, won’t go in the car unless the window is down. Other daughter constantly feels nauseous and doesn’t eat.

It has an awful profound effect on their lives.

I also grew up watching my sister live it, she also developed OCD like tendencies too. It was hell.

You aren’t alone. X

Pigeonqueen · 25/08/2024 20:45

I am not an expert in any of this by any means but if your dd is going faint and saying she can’t see I would take her to A and E to be checked over as that’s very serious and she may need IV fluids and medical help - it may even help to speed things up.

Lubielou79 · 25/08/2024 20:53

Thank you both

I think I will talk to the GP again. We were on holiday in Lanzarote last week when she temporarily lost vision. It was first thing in the morning and it had been a long time since she'd eaten. I made her eat a chocolate bar and her vision came back and tantrum stopped.

We booked the holiday before any of this was going on. We hoped a change of scenery might help but that was wishful thinking. It was very stressful.

@KenAdam this sounds very tough, thank you for sharing your experience

OP posts:
Ceebs85 · 25/08/2024 20:55

Sorry I hate this type of comment on MN which assumes everyone is minted...but have you the means to pay for a short course of CBT? It could be enough to set her on the path of managing it better and at least eating enough calories to live

Could you identify any particular food that feels safer for her and work on eating tiny amounts of that consistently for a short while showing her it won't make her sick? Then gradually add more things in of her choosing?

Peppermintlover · 25/08/2024 20:58

Hi,
My daughter had emetophobia and we have tried 3 different counsellors but the thing that has really helped is the emetephobia free thrive programme. I think they start at age 8. It has really helped me understand her condition too.

I really feel your pain and I know how much it affects the whole family.

My daughter is 14, she developed it around Covid time.

otravezempezamos · 25/08/2024 21:00

Gosh this must be hard. She must be traumatized by that episode of being unwell. Did it last a particularly long time or was it worse than a usual bug?

What a PP has said is interesting, RE eating outside. I used to panic eating in restaurants as a child, but I remember going to a very chilled open air one and I was fine. If she was outside (I know winter is approaching but you can get a patio heater), perhaps with piped music, plenty of chat, might she relax? Also don’t plate up food. Make sure anything served is from a bowl where she can serve herself. The pressure of having to eat a fixed amount will make it worse.

Lots of sympathy OP this sounds horrible for you and your poor daughter.

Lubielou79 · 25/08/2024 21:02

We've started CBT but so far the exposure aspect of it seems to make things worse with a period of fasting for a day or two following the fortnightly sessions. It might be a slow process

We are focusing on getting whatever we can in. She's better on carbs but getting her to eat meat is tricky.

OP posts:
KenAdam · 25/08/2024 21:05

Does she have any safe foods?

My daughter is at the stage now where if somebody in the same room as her coughs. She leaves!

Also seems to be more common in girls than boys I’ve found! I can pin point both triggers for my girls.

Peppermintlover · 25/08/2024 21:05

Exposure did not work for my daughter (she had this through cahms) actually I think it made her worse.

My daughter wouldn’t eat meat or anything reheated for a while (she will now) she also really struggled in restaurants for a long time. But she’s come on so much. There is light at the end of the tunnel. The emetephobia free programme taught me and my daughter it actually isn’t about sick it stems from feeling things are outside your control.

TheKoalaWhoCould · 25/08/2024 21:06

Have you thought about giving her vitamins and telling her they are anti-emetics just in the short term to get her to eat whilst you wait for access to support? If you’ve given the correct numbers for her weight that’s incredibly low and this might allay her anxiety a bit?

Backtothe90ties · 25/08/2024 21:07

My DD has this and it started around the same time as yours. She lost a huge amount of weight too. She was lucky enough to have input twice through local mental health services and although it does still bother her it doesn’t rule her life in the same way.

We were taught to do parent led CBT with her using the book below. This really helped with her eating in particular. Many professionals view Emetephobia as an eating disorder as it often leads to restricted eating. Have you spoken to the GP about this? It is possible that your area has another service for eating disorders that you may be able to access.

Please DM me if it will help.

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Lubielou79 · 25/08/2024 21:07

@Peppermintlover thank you so much, I will look into this

@otravezempezamos she had a really awful bug, she was sick about 20 times and couldn't hold even water down till day 3. We ended up in the children's hospital because she was a bit dillereous.. by the time she was seen she was holding fluid and on the mend.

She was fine afterwards but at Easter someone was sick in the classroom and this is when it started

She's definitely traumatised by the event cause she won't wear PJs or sleep on sheets she associates with being ill

OP posts:
otravezempezamos · 25/08/2024 21:13

Lubielou79 · 25/08/2024 21:07

@Peppermintlover thank you so much, I will look into this

@otravezempezamos she had a really awful bug, she was sick about 20 times and couldn't hold even water down till day 3. We ended up in the children's hospital because she was a bit dillereous.. by the time she was seen she was holding fluid and on the mend.

She was fine afterwards but at Easter someone was sick in the classroom and this is when it started

She's definitely traumatised by the event cause she won't wear PJs or sleep on sheets she associates with being ill

Poor poor girl. That sounds horrendous. And the kid being sick at school would have brought back memories. She must associate feeling more full with feeling ill, as the illness was a bug, not food poisoning. You sound brilliantly caring and not shouting at her or getting impatient (this was what happened with me when I was afraid of eating out, but that was the 90s and child psychology wasn’t a thing then, I was just ‘acting up’. Mine actually started after my grandad died). Let her have control where possible. Could she help you plan and prepare food so she feels safe around it. Would she eat if she had a friend round? Not a long term solution but if she can see she can do it…

User5462462 · 25/08/2024 21:16

I was emetophobic starting age 8 and it was awful. Sorry you have to go through this. Emetophobes can eat and enjoy food but only under the guarantee that it won't make them sick. So I always had a list of "safe foods" and eating from there didn't trigger anxiety.

Obviously from a therapy pov it's not ideal to encourage making lists of "safe" and "unsafe" things but if the alternative is literally starving then it's better than nothing. Since 8 is still fairly young you have the advantage that they will believe what you tell them. If you emphatically say that certain foods are safe and will not make them sick, then it becomes easier for them to integrate those into their diet. From my own experience, these are good ones to start:

Perfectly ripe bananas. Absolutely no chance anyone can get a dodgy tummy from an unpeeled banana. Underripe ones might be too starchy and cause GI symptoms so best to avoid those for the time being.

Crackers or crisps

Plain toast with butter

Plain noodles with butter or jarred tomato sauce

Very well washed (or peeled) apple slices

Shelf stable puddings, chocolate bars or biscuits

Foods to avoid are any that could inadvertently cause GI symptoms (fizzy drinks, high fat, spicy, high lactose, high fibre etc) or any that are typically connected with food safety issues (bagged salads, raw produce, seafood, shellfish, cold meats etc).

There's a lot of irrational thinking in emetophobia so you need to offer lots of reassurance that the foods are fresh, show them the cooking process so they can see there's no cross contaminations and that everything is well within the expiry date. Don't use any open packages that have been stored in the fridge for a while. Again, these are typically emetophobic behaviours that therapy aims to eliminate but if you are in an emergency situation right now, then it's better to lean into the thinking than attempt to do too much too early.

By given them reassurance, you indicate you understand their thinking patterns and are willing to work on a productive meal plan together. I strongly encourage looking into the Thrive Program by Rob Kelly is which is the closest accurate solution to emetophobia. CBT, hypnotherapy and other types of talking therapy are virtually useless against this phobia.

At the root, emetophobia is about control and psychologically very similar to anorexia. It becomes a bit easier to understand considering how prevalent anorexia is and how often it affects young girls. Instead of a fear of gaining weight, emetophobia tends to hit girls who are easily disgusted and hate the "grossness" associated with being sick. These are girls who are most likely slim to begin with (hence less susceptible to anorexia) but with the phobia, many tend to remain skinny into adulthood.

There is also a significant overlap between neurodivergence and emetophobia. If your DD hasn't been assessed for ADHD or ASD and you feel that might be an issue, then definitely worth getting it checked out. Symptoms tend to improve immensely if co-morbid conditions like ADHD get treated using medication.

If it's any consolation, I underwent lots of therapy in my 20s, did the Thrive program and eventually managed to reach a point where the phobia doesn't affect my life to any significant extent. During school & university I was essentially surviving on a diet of the foods mentioned above, but nowadays I eat virtually anything and have no problems with restaurants or travelling. I also went through pregnancy, birth and took care of a refluxy baby.

A lot of that was self-realisation and reaching a point where you don't want to live within self-imposed restrictions anymore. My parents were totally oblivious to it all and I wish I had their support and awareness earlier. Most of the therapy options were through my own research and I also realised much later I have ADHD so that explained a huge amount of the disordered thinking that fuelled the phobia.

MSLRT · 25/08/2024 21:17

My ten year old granddaughter has the same thing. I think Covid has made it worse because for a couple of years children were not getting sickness bugs so there seems to be a lot around now. One thing that has helped was seeing a hypno therapist. It seems extreme but it was done in desperation as she wouldn’t eat or sleep out of fear of being sick. It had helped a lot. Seems to have reworked her mind and she was given a tape to listen to every night. Might be worth a try.

Lubielou79 · 25/08/2024 21:20

Thank you everyone for the support
I will look into the links and ideas shared

OP posts:
Abbeee · 25/08/2024 21:20

My 10 year old DD had something similar last summer. She was refusing to eat in case she vomited. It was horribly stressful so I really sympathise. We took her to a child psychologist who did emdr therapy on her. Apparently children respond very quickly to it.

Lubielou79 · 25/08/2024 21:23

@Abbeee I hadn't heard of EMDR, I will look into it

OP posts:
Lubielou79 · 25/08/2024 21:24

@MSLRT I did wonder about hypnosis too. Great to hear this worked

OP posts:
mitogoshi · 25/08/2024 21:25

When my daughter stopped eating (happened a few times don't ask) the key was little amounts, often, doesn't matter if it's healthy and to give her food whilst she was doing something else eg watching tv, playing a game, things they can't resist. If she is eating a meal, add extra calories with olive oil, full fat everything etc.

I've had my DDs sight go funny, in hospital on a drip and perseverance gets her back. I hope never again, but who knows?

Best wishes op

Holyguacbatman · 25/08/2024 21:31

Sorry you are going through this, I would recommend paying for a course for PTSD focussed Emdr therapy. It really does help.

Orla32 · 25/08/2024 21:32

As an emetophobe myself I strongly recommend EMDR, whilst I am certainly not "cured" i am a lot better than what I used to be.

Although it's hard you need to be sympathetic but not enable. I found when people around me enabled my fear it got so much worse, I.e. more avoidance.

Also please don't let her loose on google etc on forums. These for me made me fear things I never used to - I.e., loose bowel movements as I saw someone else did and my irrational brain thought it made sense to fear it.

Knowledge is power - teach your daughter how germs are spread and that with bugs they're not airborne and the trick to staying healthy is to wash your hands before you touch your food/face and thus there is some control.

It's the hardest phobia as you go into fight or flight but cannot run away from your own body - you sound loving, patient and kind so that'll all help your DD.

Berry99 · 25/08/2024 21:33

First off, sending all my love because emetophobia is honestly such a difficult thing to experience. I have got some suggestions though. Mine started as a child and I'm now 28 and am so much better now.
Here are my tips from someone who has spent their life so far trying to overcome this.

  1. Address the underlying trauma. Mine also stemmed from complex trauma after lots of hospital visits. After years and years of therapy, EMDR therapy, eye movement desensitisation, was the only thing that really made a big difference
  2. Any food at this point is good. If meat is a trigger, that's fine, stick to safe foods. I still don't eat meat, but I don't need it to stay well. It's okay to not eat everything. My safe foods were crackers, roast potatoes and toast when I went through a few months period of not really eating.
Try and keep eating as positive as possible. Being able to snack in my room in my safe space helped. It can get better but it's such a complex mental health condition and you really need to find a therapist that understands it. My therapist said it should standalone as it's own condition, not a phobia as it's so complex. Bit of extra info, I'm now on my way to getting an Autism spectrum disorder diagnosis as well. There seems to be overlap but doesn't mean just because she has emetophobia she's neurodivergent, just one to keep in mind. Traditional CBT therapies don't tend to work for autistic people. Sending all my best wishes, reach out for support yourself because looking after someone going through this isn't easy. You're not alone though
Pebbles16 · 25/08/2024 21:34

Just allow her to eat what she wants initially even if isn't a 'healthy diet'. Get calories in and then speak to healthcare experts about introducing safe foods.
I am sure you know this is going to be hard work
A forca (as we say) and keep coming back for help.
My DSis would only eat bananas and I was highly allergic so my poor parents had to split the house into safe zones. She eventually grew out of it, I am still allergic to bananas!

Cozylozy · 25/08/2024 21:37

My DD has this, she developed it after a nasty vomiting bug. She went off alot of foods at the time and was v selective what and where she ate. Whatever her foods are let her eat, snacks at any time and wouid she drink milkshakes as an option? Does she like cooking, this would maybe help too to get her involved ?My DD is now a teenager it was a long road and although she still has it it isn’t anywhere as extreme as it was,