Hypermobility

[crystalblue01]

Hi my dd was told that she had Hypermobility by a podiatrist about 5 years ago
We have spoken to the Dr who himself has kids with Hypermobility he didn’t advice much
However my dd is 17 doing A levels and struggling to revise she said she can’t absorb it could this be part of the Condition she also suffers with pain in her back & joints
Can anyone recommend how I could go about seeing someone who specialises in hybermobility please ?

Pain can make it harder to memorise stuff, in my unscientific reckoning because some of your brain is being used up to deal with the pain.
Other than that - hypermobility can be a sign of Ehlers-Danloss syndrome, which is worth checking out if the hypermobility is becoming painful. GPs can diagnose now but you may need a referral to a rheumatologist. Hypermobility is common, but it's worth checking for hEDS if it's becoming painful, as later on she may end up with dislocations/ subluxations.
Hypermobility and EDS are also common co-morbidities with neurological conditions that might be affecting her concentration, including autism, ADHD, and dyspraxia.

Usual route is by a paediatrician rheumatologist if you can . Usually involves having to pay privately unfortunately to get a diagnosis in my experience for my son . They can also recommend physiotherapists - physio is so Important to manage symptoms . In addition , your daughter should be entitled to extra time , rest breaks and use of a laptop ( if hypermobility is effecting her hands , arms and fatigue too ). But you need a letter or report etc from the paediatric rheumatologist or physio , dr etc . You need to contact your daughters supported learning department at school or college to get this entitlement as soon as possible in time for her A levels .
I’m in the south east , I can recommend several paediatrician rheumatologists in London and surrounding area .pls let me know if you need any further info .

There are lots of comorbidities with hypermobility, and things ADHD are 5x more prevalent. Obviously, things like this going undiagnosed can have a huge impact on school work, so i would recommend you start there, it sure helped for my little one. Although, getting the support can be a nightmare.

Pain-wise, we all use the free exercises in The Fibro Guy's Rehab resources section of his website, they help a lot, along with the taping videos.

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