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Psychosis

7 replies

Duckeggbeanie · 04/03/2023 00:54

Evening all,

Just looking to see if anyone else has been through navigating CAMHS with teenage psychosis?

DD's friends mum called me about a year ago to say her DD had seen my daughter with fresh cut marks. Around this time my daughter had become withdrawn and snappy. After some talking to her she admitted she didn't know what was wrong but felt like she "didn't want to be alive". We got in touch with our GP, who was fab and got us a referral to CAHMS and DD school.

Well long story short CAHMS said she wasn't, basically, 'ill enough' and discharged us. We got her play therapy through a local charity but all the time things got worse at home.

Resulting in a recent suicide attempt, in which I sat with her in A&E for 5 hours waiting for someone from CAHMS to turn up. She did share with this woman a lot I didn't know about, I knew she was still cutting but not the extent, both arms wrist to elbow and both thighs knee to hip. When I took away what she'd been using, a blade from a sharpener, she'd used paperclips, and broke a small mirror to use too. Later that week I found a hand towel in her bed full of dried blood. She also admitted she rarely sleeps and she hears voices most of the time, but particularly when anxious or angry, which tell her to do 'horrible things'

I've no doubt she has swung very near phycosis lately, her rage is violent and frightening, with this blank wide eyed look. My DS is 12 and he gets in equal parts scared and angry with her, he threw keys at her once lately and I had to stop her from trying to repeatedly punch his head. She's kicked holes in her bedroom door. At worst she tells me she has 'intrusive thoughts' about murdering me and plans how to hide my body. A lot of this she says she can't remember. Its like she's 2 very different people. When she's calm she says it's like 'my head is a car and there's other people in the car. Sometimes I'm driving. Sometimes I'm in the back seat.'

After a lot of pushing at CAHMS she's currently seeing a psychologist but we're still pushing for a psychiatrist. Psychologist has said maybe, but then again maybe a blood test because it could be 'just hormones'.

Trying so hard to keep our little family going but feel a complete mess and failure. So worried about the kids, the impact on DS who has stopped sharing his needs with us as much, not to mention the stress on my marriage and I've had to cut back at work so DH or DS isn't here alone with DD, so money is also a big worry.

Feel like we're all drowning.

OP posts:
Silkierabbit · 04/03/2023 19:58

I have a DS in hospital with autistic catatonia under section via cahms which is a bit similar. They said they have an early intervention in psychosis team within cahms for home treatment. Basically need to keep calling and possibly getting any agencies like school and la if ehcp gp to do multiple referrals and stress urgency. Any very serious incidents A&E.

Minimalme · 04/03/2023 20:33

I am so sorry - CAHMS are failing and playing Russian roulette with young people's lives.

If your dd was an adult and she went to her GP to say she felt suicidal and heard voices, they would medicate and offer therapy.

Instead, because she is still a child, she has been denied help.

If you can afford it, try seeing a private psychiatrist who can prescribe.

I wish you strength and hope that our shitty, failing CAHMS system improves.

Springisclose · 04/03/2023 20:53

Have your tried herbal sleeping Tablets to help her sleep. My DC had a Bad Mental Health and the psychiatrist suggested a valerian tablet to help with sleep. A bigger dose. It really helped. Good sleep is so important

Wakemeup17 · 04/03/2023 20:58

She absolutely needs to see a psychiatrist if she's hearing voices and behaves in the way you described! Psychosis is a symptom but you need to find out what's causing it.

Scrambledchickens · 04/03/2023 21:05

Second the child psychiatrist, it can get better.
My DS was very unwell with similar aged 10, we had to get diagnosis then medication and thing s are so much better.
is she still going to school? Is it a good fit for her? I would honestly remove all demands and just support her as much as you can.
is there any chance she is undiagnosed autistic? It can present very differently with girls.
with regard to siblings I reduced massively time they spent together as it was just too easy for a meltdown to occur. I also bought the others a hefty door stop so they could retreat to their rooms and jam it in to stop the door.
i would also explain during moments of calm that she is loved and that this is a storm that will pass and you will help her through it.
I really feel for you I’ve been there and it’s like being thrown into another dimension that you are not ready for. X

exhusbandsaknob · 04/03/2023 22:11

My child was also experiencing very scary things and CAHMS were useless. I went in person to their office / clinic and said I was calling the local paper there unless they got my child an appointment. Asked the persons name and said I would quote him in the press for taking no action when someone was injured. I got the appointment and then meds for my child. It really shouldn't have taken me doing that. Hope you get some supportFlowers

0hbehave · 13/03/2023 21:07

How old is your daughter OP?

Most areas have an Early Intervention for Psychosis (EIP) service and often they work with people over 14 years old. They will likely still need to be under CAMHS psychiatrist for prescribing if required but as a starting point your GP could refer for assessment.

I would say as well that hearing voices or having unusual sensory experiences is not always conceptualised as psychosis. Often people with a more complex trauma presentation may describe voices, especially during periods of intense emotions like anger and frequently those voices relate to things like self harm.

It sounds really frightening for you and your daughter and son and I feel for you trying to navigate the system. If it was me I would return to your GP and ask for an EIP referral if she meets the age criteria. It may not be where she ends up receiving care but it might be a quicker route in to the right service.

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