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Daughter in reception struggles socially - aspergers maybe?

2 replies

Emerald6 · 22/10/2014 21:33

I'm just back form my first parents evening and my daughters reception teacher said she has never met anyone quite like her before. She described her as very quiet and struggles socially and finds it difficult to be with/play with more than two other children. (She's anything but quiet at home and can be carefree but somedays very emotional) I've always described her as highly sensitive. Her teacher was suggesting Aspergers testing but was playing it cool and trying not to alarm me, she said she'd keep an eye on her at this stage. My girl is bright, imaginative and has high levels of concentration and persistence, but can also be very fixed about things. Over the Summer she insisted on having the same book (called starting school) read to her each evening and if I suggested anything else she'd get very upset for an hour of so. So I tend to read the book she wanted to avoid the noise and upset. But what really worries me, was she would say the same things about the book at the same pages every evening. She's out of that phase now, but there are other little routines she creates for her self and then gets worked up if it doesn't go her way. Shes always been like this so I'm used to it now. Having a second child made me realise how difficult my eldest is. I have wondered about Aspergers/social difficulties before but family members always try to tell me she's just like everyone else. I know she isn't and hearing her teacher say the same just made me sad, knowing how difficult it is for her interacting with others. My husband thinks it all goes back to her difficult birth. Starting school has been very tough for her. Does anyone have any similar experiences? Thanks for listening.

OP posts:
AnguaVonUberwald · 22/10/2014 21:46

Can I suggest you re-post this under the special needs section, there are lots of people there was can advise and help.

For what it's worth, the diagnosis process takes so long, voice of bitter experience, that I would be banging on the doctors door asking for a referral, as where I am it takes six months from referral to the first seeing the paediatrician, and then they say, let's wait six months and observe development. After that, even if they do think it's autism, they have to refer to the diagnostic team who have a waiting list of over 9 months, so you are looking realistically at 2 years from referal to assessment!

Emerald6 · 22/10/2014 21:55

Oh yes, I don't know how I ended up in this area! Thank you.

Your voice of experience makes me realise that like so many areas in the health system, you have to fight your corner to get heard and listened to. For some reasons I didn't think it would be so difficult with children involved. Yes, I will get more assertive, if she does have something the sooner we know the sooner we can get help and advice. Good luck.

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