Also I'd like to know what carers think of this very common event:
My son who needs the care sometimes likes to quietly read or watch TV, do his coursework on his adapted laptop. He needs Intermittent help to plug things in, get his headphones on etc, so dipping in and out.
He currently lives at home with his younger brother, his dad or with me when his dad is away (we are not together). We both work long hours and are exhausted, like everyone. There is always lots of domestic chores to be done - laundry, tidying the boys (shared) bedroom and sorting their clothes, cleaning, etc etc, the usual stuff. Also researching what to do that is accessible and fun for my son, applying for cinema or transport cards etc etc
However, multiple times our carers spend their shift sat on their phones reading or studying and have told us it's not their job to do domestic chores.
I have NEVER done this on any shift I was getting paid for as a carer or as a nurse (when I was doing one to one) or as a student nurse regardless of my hourly rate. I have always been busy either engaging with the patient, researching activities, equipment, cleaning, tidying.. anything useful for the patient or the family.
Do any of you carers think this is ever acceptable because I'm not joking, almost ever single one we've had has done this.
We are nice and kind and like people to feel comfortable. It's a home environment so it's sort of hard not having people in it that we don't want to feel at ease. And I live in hope that we'll get carers who work like I did. It feels wrong to try and force people if they don't want to do this stuff.
And because we're desperate we put up with it.
There's a bit of almost an aggressive tone to this thread regarding pay and boundaries and this is what I'm experiencing with our carers, they seem to be defining what their role is and to be honest, because I've worked in a different way.
I find it hard to accept and I feel really sad for my son who will have to manage this all himself. He finds it really hard to ask carers to do anything as it is because he is afraid of annoying them and it saddens me very much when I get home the carer has her study books out, the laundry is still sky high and my son asks me if I can take him for a wee.