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Cancer

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Purgatory

29 replies

Overbrookanddale · 04/07/2026 09:19

It really is, isn’t it?

DH has been suffering with unidentified pain in his hip for a few months, and it’s got steadily worse over the course of the year. Three weeks ago, he had an MRI which identified cancer in the hip bone. Further tests have established that he has a cancerous mass between his lungs, so the bone cancer is secondary.

That’s what we know. We don’t know the course of treatment or life expectancy or what’s likely to happen in the future. It is terminal as much as I can glean but does that mean weeks, months, years? He is in a lot of pain and on strong medication to manage that pain. So he’s tired and generally quite low (understandable.)

Meanwhile we have a five year old and a child on the cusp of turning three who know ‘daddy is poorly’ but not much beyond that. They forget; they try to climb on him, they knock his crutches over, they are loud and ever present. He’s struggling with them; I’m struggling with split loyalties between managing them and him and also the toll of doing absolutely everything has really got to me. I’ve been signed off work for a couple of weeks which has helped but I’ll have to go back eventually.

I don’t know whether to suggest to DH he stays at his parents for a bit, if he’d be more comfortable there? It’s so hard knowing what to do. I hate weekends at the moment as I feel I need to have the children out and about for all of it, and it’s exhausting. I’m dreading the summer holiday. I hate making DHs pain and suffering about me but it has impacted me and the children’s; how could it not?

Desperate to know more. It really does feel like purgatory Sad

OP posts:
ExplodingSmittens · 08/07/2026 07:42

Overbrookanddale · 08/07/2026 07:07

He can’t walk for any length of time but he can walk short distances with crutches. I think he’d be really distressed to have a wheelchair to be honest although we may have to consider one as things continue.

He has an appointment today so (again!) hoping for some more answers.

Hope you do get some answers. In my experience, which I grant might be quite limited, they don’t tend to offer any real information up, you have to ask direct questions. So for instance if DH does want to know how long he may have left, one of you will need to ask. Do mention that you’ve applied for PIP too as they can provide a form of he has less than 12 months which will mean that it’s granted automatically.

Will he thinking about you today.

ApolloandDaphne · 08/07/2026 07:46

I hope you get some clarity today. It sounds very difficult.

Enigma54 · 08/07/2026 15:41

@Overbrookanddale So sorry you are are going through such turmoil. I also have a rare ( but different cancer) to your DH, so know how isolating it can feel.

Try and enlist as much help and support as you can from family and friends. As a previous poster mentioned, people do tend to step up in a crisis.

I do hope today’s appointment is productive and you have some kind of plan going forward.

Thinking of you all.

putitonthewrongway · 08/07/2026 20:20

I hope you got some more answers today the waiting is just awful sometimes.

Yes sounds like he is completely burnt out and he’s zoning out in order to cope.

I hope you are able to get some support sorted, when you know what is likely to happen in the future, at least you may have a clearer picture of what you need to ask for help with. Don’t suffer alone x

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