Hi all, it’s taken me a little bit of time to get the courage up to post here. I ramble a lot so will try to stop this becoming too long while sharing my story so far.
Back in December I went to my GP thinking I was hitting perimenopause. I honestly only went because I was going through the craziest mood swings and paranoia and I was pushing DH and my friends away. My periods had also changed and I was flooding badly every few weeks with lots of lighter bleeding in between so GP suspected fibroids and referred me for a scan for that while putting me on HRT.
Mid-February was that scan, both a vaginal and external ultrasound. Results from that showed an enlarged womb so GP told me to immediately stop the HRT in case it was “something untoward” (her exact quote).
After that it’s felt like a whirlwind. I was so petrified of it being cancer but felt I didn’t have anyone other than DH and one friend to talk to (my two other closest friends both recently lost close family members to cancer and one told me to stop talking about the possibility as it was triggering for her).
Hysteroscopy was in March. I had multiple polyps removed, biopsies taken (which I had been told they were going to do anyway “just in case”) and a Mirena inserted. Afterwards DH and I were taken to a private room and told my endometrium had looked abnormal so they’d try to get the biopsy results ASAP for me and just over a week later I got the phone call to say Grade 1 endometrial cancer.
All the previous appointments were at different hospitals in our area so on Monday just gone I got to meet the team I’ll be under.
The next step is an MRI which is booked in for the 12th and after that I have the choice of a hysterectomy or because my BMI is high which makes the surgery riskier, as long as the MRI doesn’t show it anywhere else I can choose to wait for a year or two while working on my weight loss and having biopsies every 4 months.
At the moment I think I’m going to go towards the surgery anyway. Despite the Mirena I’m still bleeding every day although thankfully much lighter than it was and what I didn’t get to tell the doctor was that I’ve been trying to lose weight for years and in that time I’ve only lost a stone. My main issue there is really that I’ll do well losing weight but because I have fibromyalgia I’ll end up having a really bad flare up or my back will seize up (had back issues since my teens) and end up just surviving on the unhealthier food then. A lot of my calories previously were from fizzy drinks and alcohol as well so trying to work on cutting them out (not easy when I can’t have artificial sweeteners and one of my hobbies involves being in a pub but I have a plan in place for that now).
I know this has ended up being super long but that’s pretty much everything so far. Oh and I have always had health anxiety so that’s spiralling like crazy right now as I’m sure you can imagine.