It wasn't ovarian, it was lymphoma

[Ohjoyohbliss]

My original thread is nearly full, hence starting this one.

I knew I probably had cancer in late July 2025 but it took until the end of August to get a definitive diagnosis: Diffuse Large B-cell Lymphoma, Stage 4.

I have had six rounds of chemo, the last of which was on 12 December. Had a lot of nausea and vomiting, plus an infection which left me hospitalised on oxygen and IV antibiotics for a while. I am extremely weak now, and waiting to find out whether the cancer is still active. (A scan at the half way point showed it was.)

Obviously things will be very different in 2026 and go one of two ways, depending on the scan result, which I will find out on Friday 16th January.

Previous thread:
https://www.mumsnet.com/talk/cancer/5382361-likely-ovarian-terrified-anyone-available-for-a-hand-hold

(Not sure why that takes you to the middle of the thread; sorry.)

I've followed your threads on this but never commented. I am so happy for you :)

Fabulous news...enjoy your 0% G&T and make sure it has an extra berry on the top!!

Wonderful news.. x

Fabulous news x

What brilliant news, I’m so very happy for you, enjoy your weekend xx

Great news!

That us truly amazing news Joy! I am so, so happy for you! Hopefully now you will build up strength for a lovely calm relaxing summer of stuffing your face and not feeling sick eventually!

Do I take it from your username that you have been or will be going through CAR-T?

Really good news! Enjoy your G&T!!

HUZZAH! Fantastic news.

You really and truly made my day, Joy!! Thanks for sharing your fantastic results, I'm so happy for you. After a shitty week in work this really made me very happy- even if I dont know you in real life. I'm glad you are celebrating 🍾 ❤️ Every milestone deserves a celebration x

No sorry for confusion. I posted in this thread when you first were deciding whether to have them. I used to work on car T cells in the lab before they were licensed. I changed my username for the thread. I might not even have posted in the end as it’s easy to recommend them when you are not the one having to make the decision and take the risk. I’m so glad it’s going well so far ❤️

Just to clarify, yesterday's fantastic scan news doesn't mean I'm "cured" or in remission yet. It's far too early to say that. It's still brilliant news, and I'm still elated, but lots of CAR-T patients do relapse within the first year or two. I'm hoping that the Aleta trial drug will help to prevent that.

So great news and cautious optimism for the future.

Of course, me being (anxious) me, I have already started to worry about the mystery "thing" flagged up in my bowel.

This sounds like real progress. Stay elated - a bit of that never does any harm!

Of course Joy. I understand. Also completely understandable to be anxious.

Wonderful news. And I completely get the anxiety. 🌺

Totally understandable to be cautious, it's early days. Nevertheless great news :-)

Totally understandable why you're cautious and why you don't want to make any assumptions. But still positive news and definitely worth a mini-celebration! 🥂

Completely understand why you don’t want to speak too soon Joy, but I do think your own inner strength has got you to this point, and you deserve to give yourself massive kudos for that!

Ive just updated my thread and would be interested to know your thoughts as I’m a little wobbled by it tbh. Was hoping today would be a yes / no situation, not a maybe and will monitor 🤦🏼‍♀️.

I'm having a lot of trouble with Mumsnet recently; I keep getting error 400 Bad Request. Anyone else?

Saw the Aleta trial consultant on Tuesday. She said that because the first scan showed a complete response, I will only have six doses of ALETA-001 instead of the 12 originally planned. That means I will be half way through after Thursday's dose. The final dose will be before my three month scan, so I have no idea what will happen if that's not clear.

I sure do. The screen frequently freezes too. I actually think most anything that happens to others happens to me too. It drives me batty.

A lovely afternoon with your friend in the beer garden, another turns up, then these encouraging results. Wonderful, Joy. Delighted for you. x

Mumsnet is playing up for me too. Very annoying.

i guess with your scan results you have to just take it for what is right now. It is great news and a million miles better than finding the mass hadn't completely gone. Hopefully the bowel thing will be nothing or a polyp. But today is a good day. Today your as cancer free as you can be and in itself is amazing as a stand alone fact.

Even if it never comes back I don't think you will get to the point of putting the worry away for good. That's normal. But try to grab the good days and remind yourself how far you have come. You got to this great stage. So if something changes down the line then you will deal with that as well IF you need to. Today you don't need to. Lots of reminding yourself "let's deal with that if and when. It's not true for today"

Half way through on Thursday sounds as good as it gets!