Well, today was very stressful.
TL;DR: I had bloods taken and my PET scan but didn't get to see the doctor. And I might have a UTI.
Schedule:
11:30 Trials unit for bloods
12:15 Haem outpatient dept to see the doctor
13:00 Nuclear medicine dept for PET scan - I had to fast all morning for this
Taxi arrived promptly and got us there in plenty of time. Bloods were taken, the only slight delay was that they wanted a urine sample and it took ages for me to produce one.
Nevertheless, we got round to outpatients just after 12, to be told that the doctor wasn't there yet and it would be around 12.30. I went out on the balcony because I feel safer there than in the waiting room, but DH stayed in the waiting room so he could hear if I was called.
Around 12.30, the CNS from the trials unit came and found me on the balcony to say the urine sample showed signs of infection. Lovely. I don't have any symptoms. She said she would let the doctor know, although the doctor still wasn't there.
By 12:55, still hadn't been called, so we let the receptionist know I was going for my scan. (The scan was originally booked for 09:20. I asked if it could be later and was told no, but when the trials team asked them to make it later, they somehow squeezed me in at lunch time. So I knew the scan dept was full and I couldn't afford to miss the slot.)
We were still waiting for the lift when the CAR-T CNS came chasing after us and said we really needed to see the doctor and she would phone the scan people to ok it with them. She also said that they called my name once but I wasn't there. DH is adamant that when I was on the balcony, he was listening out for my name and it definitely wasn't called.
So back we went to sit in the waiting room. Time passed. I wasn't called. My phone rang - the scan team to say am I in the building because if I didn't get there straight away, I would miss my slot.
Went down to the scan dept. The CNS then phoned me but I was receiving the radioactive dye by then, so DH took the call. The message was that the doctor will order the Aleta etc for Thursday and will see me on the ward after my admission tomorrow. I don't think she will - normally the ward ask me to arrive in the evening and I doubt that the consultant will be working at 8pm.
Honestly, they don't seem remotely able to coordinate between the departments and I found it incredibly stressful being told different things by different departments and not knowing whether I was coming or going. Added to which, I hadn't had anything to eat all day because you have to fast for at least six hours before the scan.