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Cancer

Find advice & support if you or someone you know has been diagnosed with cancer

hormones/breast issues..

1 reply

suzanne40 · 14/09/2025 13:36

Sorry for the long post, ill try to keep as short as possible.

Last year I found out I had a huge ovarian cyst that needed to be removed.
It was removed this February and they also had to take my ovary with it as it had taken over all healthy tissue. So I have one remaining and I sometimes have psoc in that remaining ovary.

I suffered with horrendous bleeding which led me to find the cyst in the first place. During my operation I decided to have the mirena coil fitted.

The coil didn't take away my periods, but they were much lighter and there was no pattern to them. I would just bleed some days and not others. Around the 2 months mark I had the worst breast pain which I can only liken to after I gave birth. They swelled, and were very painful. This happened in both breasts but always use to stay more in the left one, to the point were I was little concerned. I would also get itching too. This did pass at the 4 month mark, and then the 6 month came and pain and itching would come and go in the left breast. I have never felt any lump, but my left one felt more ropey.

The 6 month mark came and I decided to remove the coil. Two days afterwards I got the awful swelling feeling again and soreness but yet again as it got better in the one it lingered in the other. I put it down to having the coil removed. we are now 4 weeks since having the coil out and I haven't had a period yet, and then 4 days ago I had some pain in the left breast again and itching. my whole breast just felt sore.

Am I right to be putting this down to hormones being all over the place the last 6 months.
I have no lump that I can feel, I have a very small chest, so I check lying flat with my arms up and im litterally at my rib cage, no discharge and I can't see or feel anything. I have heard about IBC which is concerning me. Im 40 years old, non smoker or drinker and BC does not run in my family.

im just worried about the on/off pain and itching, I know its stupid but I am so frightened now to have a scan or anything, as when I first had my ovaries scanned and something was seen she used the word mass and couldn't tell me what it was and I nearly fainted in shock, as when you hear the word mass you think cancer. I am so scared to check.

OP posts:
Onlyahalfbottle · 14/09/2025 21:53

Hi
I had exactly this about four years ago I had gone on the pill and was having pain and itching in my left breast and just a feeling of fullness in it. I was referred on the 2 week pathway but the consultant checked me over and said there was nothing wrong it was down to hormones. I just put up with it but came off the pill last year and all symptoms disappeared! I occasionally get pain/itching before I get my period but not always. Obviously everyone’s different but I would put my money on it just being down to your hormones hopefully after a few more weeks the pain and itching will go it’s a horrible feeling though I remember just being worried all the time and I read up about IBC and convinced my self that’s what it was.
I’m keeping my fingers crossed everything settles down for you!

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