Colon cancer CAPOX

[littlebilliie]

Has anyone had Oxaliplatin and capecitabine?

@littlebilliie It took around two months for the neuropathy to resolve from the oxiliplatin. After a few months or so I was started on taxol and it came back. My treatment now is palliative so I guess it will always be a part of my life 🤷🏻‍♀️😵‍💫.

I’m sorry to hear this

I finished capox just before Christmas too and the doctor recommended I take some b12 supplements to see if that helped clear up the neuropathy. Might be worth giving that a go?

Thermal inner gloves and tog rated socks are your friends. I have raynauds so this is my life. The silk inner gloves have pads so you can use your phone and I buy boots a size or two bigger to wear extra socks. I have electric heated gloves for the motorcycle 2 sizes bigger so I can wear sink inner gloves and merino wool ones underneath. Unfortunately this all came on in my 40’s and is unlikely to go away, it does look odd to other people when I’m wearing gloves inside or at 15 degrees c

Nobody told me that the side effect from chemo would continue to get worse for a couple of months after I finished treatment! When I asked they said oh that’s normal. Mine started to improve after 8 weeks or so. I’m now 2.5 years post treatment and my neuropathy is still improving. I’d kind of accepted whatever I had after a year would be my life forever but it has got less and less over time. As a PP mentioned I’m having my B12 levels checked as that can have an impact too - another thing nobody warned me about!