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Cancer

Find advice & support if you or someone you know has been diagnosed with cancer

Waldenstrom Macroglobulinemia

1 reply

SereneOpalMember · 14/08/2025 14:43

Hi, I am writing to get information about Waldenstrom Macroglobulinemia, a form of lymphatic cancer.My dad had a bone marrow biopsy, blood tests and an MRI scan(this came back normal)

My dad, 84 was diagnosed with this low grade B cell lymphoprolifirative disorder based on a low red blood cell count of 109. He is anemic as it should be 135. The hospital specialist has put him on a special high iron diet and he has to visit the hospital in 3 months for another blood test. He has a lot of brain fog and gets very tired. He has got pins and needles in his feet and hands and is suffering from the cold more than normal. They are going on a cruise next year and the doctor said he is fine to do this. I am worried about him getting infections and travelling 10 hours on the plane! If his bloods don’t improve then they have recommended a blood transfusion in 6 months time.

He is a typical kiwi. He chops wood, collects mussels, plays golf/bowls.

I’m wondering if anyone else is going through this. I am stressed as it is a cancer diagnosis after all but I’m sure there are more serious cancers out there.

OP posts:
P00hsticks · 14/08/2025 14:56

I'm sorry for your news. I've never heard of this particular type of cancer - you might get more responses looking on a dedicated cancer forum such as the Macmillan one - although note that it s a UK based site so some of the info may not apply to NZ (assuming that that is what is meant by your reference to a 'typical kiwi'). A search shows a few mentions of Waldenstrom on the non-Hodhkin lymphoma forum

Non-Hodgkin lymphoma forum | Macmillan Online Community

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