Blimey it’s been busy up in here! :)
@cantbelieveIamhere
That sounds frightening but amen for the wise nurse prepped and ready just in case. Can’t believe you managed to cold cap for four and a half hours
, what was the ice like on your hair when you’d finished? I have to defrost for a bit before I can remove the cap, I’m imagining you like Elsa off Frozen with full icicles.
Filgrastim - my friend who I’ve met in real life going through the same treatment as me, she really struggled with the Filgrastim, they changed her to Pegfilgrastim which is basically the same but you only have to do one injection and she’s had no aches and pains since! It’s a lot more expensive so they don’t dish it out freely but it sounds like you’re suffering with it, might be worth pushing for this? Have a read up on it but I think you should ask.
I use Loratadine and touch wood, haven’t really had any issues. Now the actual injections don’t register, I’ve found that waiting for my skin to dry completely after using the alcohol rub makes all the difference to whether I feel anything or not. I don’t keep mine in the fridge either, less sting when it’s going in.
@FcukBreastCancer
How is your DD doing now?
@ForestFlowerFairy
How are you? Glad the pregabalin is working for you, I’m not surprised you’re word finding on a combo of chemo AND pregab
. I got prescribed pregab a few years back for sciatica and I think I had worse fog on that than I do now!! I remember looking for everyday words and it got to the point I had to come off it, it was really noticeable to me and other people haha!
Writing down all those things for your dog was such a lovely thing to do, although I’m sorry you had to drive her there alone - your DH could have sucked it up a bit to do it together and give you some moral support. Bloody men eh?
@Nonamelass
The icy hands and feet are indeed torture, I threw a very immature tantrum on week 4 or 5 and said no more of this cold shite I’ve had enough! I found it intolerable, like having my hands and feet submersed in icy swamp. I’m getting goosebumps just thinking about it.
@Ventress
How are you? How are your parents settling into their new home?
@Sbmpp
It sounds like you’ve had a rough few years for sure but your family sound amazing, how is the visit going? My family and their support prop me up for sure, as do my two DDs. I’ve said it before but I’d be under my bed refusing to come out if it wasn’t for them needing to be fed and clothed 😂.
I get flushes too, I always thought it was the steroids because it seemed to do it the most when I had post-chemo dex then settles towards the next week.
@littlebilliie
How are you getting along with the tricky side-effects? I might treat myself to an electric blanket because I’m suffering tonight with some neck and back pain.
In my news - nothing exciting! Which is probably a good thing. My mouth is shocking, the taste is
revolting and the spicy Difflam mouthwash isn’t doing sweet feck all to help, so if anybody has any tips to help they would be gratefully received. No matter how many times I brush my teeth it’s like I’ve got morning mouth all of the time.
Fatigue is bad this weekend too, I can feel the accumulative effects of the chemo starting to build. Saturdays have always been my worse day each cycle and this is probably the harshest Saturday I’ve had so far. I had to get DH to carry baby fatfat to bed tonight and that’s a first since starting chemo…
My appetite has started to drift the other way too despite the steroids, so either I’m feeling too crabby to eat or my body has just had enough cake and is trying to tell me to stop!
So I’m just lay in bed with a hot chocolate having a scroll with both cats!
Sending peace and waving to all 
