Calling all nurses/ medical professionals

[Natkjdcjw]

Hello everyone I'm desperate for some help please.
I have recently had my dad's biopsy results via the nhs website from having the camera down his throat.
Please can somebody help me translate a few sections?

Focal intestinal metaplasia with surface low/high dysplasia

Back to back atypical glands with luminal necrosis in keeping with at least intramural moderately differentiated adenocarcinoma

Gastric cardia ulcer features of at least intramucosal adenocarcinoma

I am not in the least medical minded.
I have googled everything and have gotten myself super confused.

I am fully expecting a cancer diagnosis, but a little more understanding before we go to the upper gi surgeon on Monday would be amazing as I am a big question asker and would like to be prepared with a list before walking in the room.

Any help would be appreciated thank you very much

unforunfortunately that is a biopsy showing cancer, and what happens next depends on its staging (including needing a CT scan). What bit of it is confusing/do you want help with at the moment?

Thank you, all of it is very confusing, he has just had a cap ct scan with contrast Friday just gone. We are still awaiting the results from that. It was Saturday her received a date for the upper gi surgery clinic which was very fast, but the biopsy results were already on his nhs app.

I have spent hours researching the context of what I have inputted above, each is a section from the results section of the report.

It's just having a little bit of context before I take him to the hospital on Monday, I can ask the right questions to give my dad and mum the right information.
I have never had cancer in my family, it's so complex my brain can't get around it.
I am trying to stay positive for my parents because they look to me for guidance on a possible diagnosis that I know nothing about

Researching is great, but please don't rely on Dr Google - there is so much stuff out there that is out-of date, contradictory or just plain wrong that it's no wonder you say you get confused.

I do recommend sticking to the Macmillan website, which contains a lot of reliable and up-to-date info and I've been referring to it a lot during my current cancer journeys. They also have a support line you can call and talk though things with a McMillan nurse or other trained support worker, and online communities where you can ask questions of people who have been through or are currently going through similar experiences.

Macmillan Cancer Support | The UK's leading cancer care charity

I'm a doctor - unfortunately, that report is in keeping with cancer in both the oesophagus (swallowing tube) and the stomach. I'm really sorry. His team will go over it with you in more detail - make sure to write down any questions that occur to you all before his appointment.

As an aside, this is why I don't think it's great that patients get reports for investigations made immediately available to them without having a professional to explain and support them and their family. I'm sorry you've been put in this position.

I quite agree with you. This should never have reached the app before the patient had been informed. Totally wrong . We don't have the app in Scotland and having seen the posts on here with very anxious people (understandably) I'm relieved.

Yep, I'm in Scotland and I agree - hopefully it'll stay that way

Thank you so much,
It was actually his gp that asked if I had downloaded it, my dad isn't very good with medical things (he's a very clever man with everything except his health!!!) so he gave me full access.
I haven't tried talking to his drs but not a single sole will explain anything to me.
The care he has been given up to this point is outstanding I can not fault a single person but just the simplest of things is hard work.

I haven't told him or my mum any of this because it should be explained in deep detail

I think you will struggle to get anyone to explain anything to you other than in general terms without your father being present and giving his consent - it would breach patient confidentiality to discuss his case with anyone else. .

Leave any news to the doctors who know what they are talking about at his appointment. These things shouldn’t be released prior imo.

I have been given full access to all his medical information if they want to get in touch with him they go through me, (I'm starting to regret that now.) I will be harbouring this secret till the beginning of next week.
I have a very supportive husband on this matter, and friends at work, who I can vent to and cry on.
The guilt I feel when I look at my parents is purely heartbreaking because I feel like I am deceiving them. But I have their best interests at heart because I can't give the answers that they will need.

I have now deleted the app, so I can no longer see what is on there. We are awaiting his CAP ct results they can stay with the drs till next week I don't want to know any more than I already do.
I whole heartedly thank you for replying to my post.

I'm so sorry you're going through this, I agree that those results should never have been released on the app prior to the appointment.

As others have said, they confirm a cancer at the top of the stomach.

Treatment will depend on the staging CT, if there is no spread then surgery may be an option (often with a course of chemotherapy before and after).

If there is local or distant spread into lymph nodes, vessels or beyond, then surgery is less likely to be an option and they will then discuss what other treatments (chemo, radio, hormonal treatments if suitable) may be suitable.

Everything will be discussed in detail at your appointment and you'll meet a cancer nurse specialist too. Make sure you take a notebook and pen to write stuff down and don't be afraid to ask questions. It can be really useful to ask for the doctor to summarise everything at the end and write it down - next steps, key decisions that need to be made, when to expect to be contacted, who to contact if any issues etc.

Best of luck.

This is a mad situation that has arisen totally unnecessarily by the accessibility of information that shouldn't just be shown, but needs to be explained and gone through in context face to face. I'm sorry you have had this extra stress OP, and that next week brings some more clarity with some kindness