Gold Standard Pathway

[TinyMouseTheatre]

DFIL has recently been discharged from the Consultant and is now under Gold Standard Framework.

This is not a surprise as we've known from the beginning that his Cancer is inoperable and he is too frail for any treatment.

What is slightly irking is that there doesn't seem to be any communication from the Consultant to the GO and DFIL is in pain and the GPs just kept saying to speak to the Consultant.

This seems to have been resolved with a few phone calls last week and DFIL now has an appointment early this week to discuss suitable pain relief.

What we would like to know is what to expect under the Gold Standard Framework as it's not something that we've been through before. My own DF died exactly two weeks from diagnosis so everything moved very quickly.

I'm concerned that he's out in the community and hasn't Bern referred to a single service. The staff at the GP have asked what we want referrals to but without knowing what's available that's a little difficult to ask for.

So can anyone explain a bit about GSF and what to expect?

Thank you for reading, I appreciate that it's a long post.

I'm sorry to read your post. The gold standard framework is a service improvement plan basically. It's supposed to mean improved access to quality end of life care. If you Google Marie Curie and GSF you'll find more information about what good looks like and then hopefully will know what to ask for. The service you've received so far has been shit. The consultant should be talking to you about making plans, where your loved one wants to die, his wishes and fears etc so he can have the best possible death.

The consultant should be talking to you about making plans, where your loved one wants to die, his wishes and fears etc so he can have the best possible death.

He's had literally none of that. Luckily I'm an old bird so we've been through things like this before so I've had conversations like where he'd like to die already.

I do agree though. So far it's been shit. He's been under the Colorectal Surgeon who has kept a loose eye on him but nine of that has happened. The Oncologist saw him once, told him he was fusing and nothing could he done and discharged him.

And thank you fir responding @5475878237NC