Hi! My GP has referred me to the breast clinic for suspected Paget's disease of the breast. I am absolutely terrified as I have a two-year old at home and cannot tolerate the idea of leaving him or him having to live his life without his mummy. My dad passed when I was three, which is enforcing the worry even more.
I have a small (penny-sized) rash, right next to my nipple on my right breast. The rash is on one breast only and is raised, red, very itchy and weepy. It is in a cycle of scabbing over then the scab falls off, it weeps and restarts. I have had the rash for almost two years, but various GPs have always told me it is eczema (which I suffer with elsewhere) and have prescribed increasingly stronger steroid / fungal creams, which have not worked. It gets very itchy and requires gauze inside my bra due to weeping and sticking to fabrics. My actual nipple is a little dry and has a tiny, non-symptomatic, pin-sized black spot.
I am thirty, have no history of breast cancer (or any cancer) in my family going back to my grandparents on both sides and their siblings. I breastfed my son until two-years-old, have not started menopause (don't have any gynae issues either) and don't have a palpable lump. I am overweight. The rash has not grown in size, but does seem to have become more irritated recently - which prompted my GP visit.
I am fearing the worst and still have twelve days of my 2WW to go. I feel like I am spiralling researching and coming across devastating statistics and stories, so wanted to ask here and hopefully reassure myself a little and prompt myself to stop doom-googling. I'm in a weird place of panic and picturing the worst outcomes and being angry with my doctors for this going on for so long without a referral or even a mention of what to watch out for. Thank you ladies x