Meet the Other Phone. Protection built in.

Meet the Other Phone.
Protection built in.

Buy now

Please or to access all these features

Cancer

Find advice & support if you or someone you know has been diagnosed with cancer

Mom very likely has stomach cancer

14 replies

Stygimoloch · 16/10/2024 19:45

My mom had an endoscope procedure today. They found a mass measuring 4cm at the top of her stomach where the oesophagus meets the stomach. The report says the mass is ulcerated and bleeding.

I wasn’t there but the doctor has told my mom and dad that she is almost certain it is malignant. 9 biopsies were taken.

We’re all so shaken. Does anyone know what happens next? She’s been referred urgently but what is the usual procedure with regards to scans etc? Does anyone have any experience of this and the treatments offered? My mom is 75.

OP posts:
YoniHuman · 18/10/2024 09:36

I didn't want to leave your post unanswered. 💐
Firstly, every case is different so please don't take my post as any indication of what will happen to your DM, but I know how you're feeling. Secondly, I'm not on the UK mainland so medical care works slightly differently, but they follow UK guidelines etc.

I am going through a similar situation with my own DM(73). In her case it is pancreatic cancer picked up on a CT scan early in September after months of back and stomach pain, sickness symptoms etc all being put down to other causes such as possible diabetes, stomach infection, the hip replacement she's been waiting several years for etc. The scan showed a 5cm mass in her pancreas plus several smaller tumours in surrounding organs. So it was already at stage 4. Mum was given the news by her GP who asked her to go in the same day she received the results and urgently referred her to oncology. We finally saw an oncologist last week after a 4 week wait. She has already been under the care of the palliative care home visit team for the past 2/3 weeks after having to take her to A & E twice for dehydration and pain management.

Radiotherapy and aggressive chemo aren't options. Radiotherapy is only used if the cancer is in one area. Oncologist also said my Mum is too weak for the aggressive chemo which has about an 80% success rate. Her body just wouldn't cope with it.
Mum was offered but has decided this week not to go ahead with the less invasive gemcitabine chemo. It would only have a 30/40% chance of working and would add a month or two at best. The list of side effects is hideous and numerous.

They have decided against a biopsy as blood test confirmed cancer by 96%, CT scan showed them enough and they don't want her to have to undergo needless procedures.
We are now under the local palliative care team who check in several times a week and have got her pain and symptoms under control. She has even managed to eat again, so we just want to make her final months as comfort at home for as long as possible. She currently feels the best she has in months.

The oncologist can't give us an exact date on how long she has. 6-9 months at the very best but they don't know how long the cancer has been at stage 4. The average life expectancy is 3/4 months untreated for Mum's particular cancer type.
He also discussed a DNR with us, which Mum has agreed too and is now in place.

Just to prove every case is different. My friend's Mum had a cancer diagnosis 2 years ago, she responded well to the chemo and it gave her Mum a new lease of life. My friend said “It feels strange to say it, but cancer was the best thing that ever happened to Mum as she's finally started to put herself first”.

There are lots of cancer support groups in person and online. At the moment I'm just sticking to online but your local oncology team should be able to put you in touch or you can just google those in your area.

I'm lucky that my employer has been really understanding and has allowed me to drop my hours to spend extra time with Mum and let me stay away from public facing duties on the days it just all feels a bit too much.

Stygimoloch · 18/10/2024 19:02

@YoniHuman thank you so much for replying to and for sharing so much. I’m so sorry about your mom. It sounds really tough.

It’s just so hard to see her looking so frightened and having any power to help her other than to tell her to stay positive. We don’t know yet the full extent of what we are dealing with. She has a CT scan on Sunday morning so the results of that should tell us more.

It’s just a really awful time and my sympathies to you going through this too 💐.

OP posts:
Lauralizzie · 22/10/2024 20:29

Hi
Your mum is going through very similar to my mum. We found out yesterday that my mum has cancer located at the oesophagus stomach junction.
Can I ask whether you've received the biopsy results yet?

Stygimoloch · 22/10/2024 21:17

@Lauralizzie that’s exactly the location where they’ve found my mom’s cancer. She had a CT scan on Sunday and they contacted her to go in next Monday for the results.

I’m sorry you’re going through the same. 💐

OP posts:
mistymirror · 24/10/2024 22:14

My Mum was diagnosed with oesophageal cancer in July. Sadly it's stage 4 but she has just started chemo.
After the biopsy stage with my Mum they confirmed it was cancer and then had to send it off for staging to see how aggressive the tumour is. She also had a PET scan to see if it had spread anywhere else in the body which sadly it has to her lungs and lymphnodes. We then had to wait around 4 weeks for chemo to start. My Mum is 68 and otherwise extremely fit and healthy and this has absolutely knocked our family off our feet.
Sending love and I hope if it is cancer for your Mum they have caught it in time.

catherinewales · 27/10/2024 21:14

My husband was diagnosed with this. He's 45. All the different tests took 3 months. He's about to finished chemo but he'll stay on immunotherapy. Chemo has been tough. He was offered the operation to remove his stomach but on his second scan the cancer had spread to his lymph nodes so the operation was no longer on the table. His cancer is at the esophagus junction. We was told it was aggressive. His tumour was 5cm when they found but it was bulky. He is now terminal and he was given 9-12 months back in may. It's been a very tough journey. I think you need to decide on quality over quantity. At 70 odd years of age the chemo is very intense. It was so hard on my husband. The only reason he's carried on with the chemo is because we have young children. I send you all the love in the world.

Gottleogear · 28/10/2024 13:29

My husband (60) had a 4cm tumour in the same place as your Mum.

The cancer was discovered through an endoscopy. The result of his biopsy took a week. He underwent a laparoscopy for a stomach wash 4 weeks later, which thankfully was clear. His PET scan showed the cancer was contained and he had 3 rounds of chemo, every 3 weeks a month later, which was tough on him

The chemo reduced the size of the tumor, which meant they could operate. He then had a total gastrectomy, 5cm of his oesophagus and 18 lymph nodes removed 8 weeks after chemo finished.

From diagnosis to operation took 6 months and was in the middle of the Covid pandemic!

Subsequently he lost a load of weight as he can't eat large meals.

That was over 4 years ago and his last scan was clear.

I know others have not been so lucky.....

Stygimoloch · 28/10/2024 18:41

Thank you all so much. I am so sorry that other people are going through this and worse.

We had an appointment today. Results of biopsy confirmed cancer of the oesophagus. Initial scan CT scan seems clear for spread which is a positive but she has to have a PET scan to ensure it's definitely not spread. Doctor mentioned chemo and then surgery and then chemo as a 'best' case scenario. I felt relieved that they have some treatment for her but realise this is a long and arduous journey and I'm terrified for her.

Much love to all of you x

OP posts:
olympicsrock · 28/10/2024 18:49

I just wanted to share a good news story for someone the same age as your mum. a relative survived a good number of years after surgery for the same cancer .

There will be a ct pet scan or laparoscopy to check that all is clear before considering surgery . Sometimes chemotherapy and radiotherapy are used to shrink tumours. Your mum will be supported by a nurse specialist through the process.

coldcallerbaiter · 28/10/2024 18:53

Sorry to hear this. What were her symptoms to prompt the scan ? x

Stygimoloch · 28/10/2024 19:09

@coldcallerbaiter thank you. She's been having reflux for a while and over the last few months she's felt as if food has been getting stuck. Other than that, in herself she's feeling quite well.

OP posts:
Stygimoloch · 28/10/2024 19:11

@olympicsrock thank you for this. We met her nurse specialist today. It's great to hear of a good news story. Her age does worry me, along with the thought of what she has ahead of her.

OP posts:
Lauralizzie · 30/10/2024 18:24

Hi, what did the nurse specialist say? Have they got the results from biopsy yet? Still waiting for my mums, she had her endoscopy on Monday 21st

KnottyKnitting · 30/10/2024 18:48

One of my DFs friends (82) had oesophageal cancer about three years ago. He had 2 surgeries ( after the initial one developed a leak around the top of the stomach where it was reattached following removal of the tumour) and a bit of chemo which were a bit rough. He actually had not the greatest of prognosis but he is now absolutely fine and living life to the full.

New posts on this thread. Refresh page