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Cancer

Find advice & support if you or someone you know has been diagnosed with cancer

What does this mean?

2 replies

fatherfurlong · 14/07/2024 21:43

My husband was experiencing pain in his bowel, change in bowel habit & he has lost weight - about a stone in the last 6 months. He is under the hospital for investigation & so far has had a colonoscopy x2 as they said the 1st was inconclusive also taken a biopsy. They have called him in for another appt & attached a series of diagrams out of a text book showing the stages of cancer. The letter he has reviewed only gives him greater time of the appt.
We are now both worried. Surely they would wait till the appt to break bad news if that is what it is? To merely send the appt time & this diagram with no explanation seems crass, insensitive and serves no purpose without a face to face explanation.

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Blackcats7 · 14/07/2024 22:34

That does seem awful. Unfortunately I have found communication is frequently much needing improvement from the nhs. I only found out my cancer was stage 4 when I received a copy of a letter sent to my gp from my consultant oncologist. It was a horrible shock and I was on my own reading it.
You need to call whoever sent the letter in the morning and get proper information and you might want to complain about the diagrams being sent like this too. There really is no excuse for worrying patients and then leaving them dangling in the unknown.
In the hope of giving you a bit of a positive perspective if, and I mean if, it is indeed bowel cancer this can be very treatable. My aunt was 81 when she was diagnosed with bowel cancer after having extensive weight loss and spending all her time in the loo. She had surgery which she recovered from in a few days. We were amazed given she had severe copd but she was back at home within a week. She did not need chemo or a stoma. It never bothered her again and she lived to 92 and died of old age.

fatherfurlong · 14/07/2024 22:47

Oh bless you for your positive response.
I do think the communication is awful. The letter doesn't say he has cancer but had it done so I think that would have been preferable than to leave him with uncertainty. I do hope your cancer has responded well to treatment & that you have good support round you.

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