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Cancer

Find advice & support if you or someone you know has been diagnosed with cancer

Breast biopsy appt with specialist

29 replies

PaperbackWrighter · 25/06/2024 17:13

Hi all, this is my first-ever post and I wish it wasn't on this sorry subject! I was referred to the breast clinic on 2-week pathway after finding a lump. The breast nurse found lots more on both breasts, said better than one, she wasn't too concerned, and then I had a mammogram. All good.

A week later, I had the ultrasound (they didn't have staff to do all in same day). Radiologist doing ultrasound said showed dense breast on both etc nothing to worry about. Until he got to the top of my right breast where I'd found the original lump. He said he'd found an area of concern and needed to take a biopsy. He did one then another as said the lump was subtle (doesn't feel it to me, like a child's marble under the skin). I asked how many people ended up with cancer diagnosis from breast biopsies. The nurse said 50/50 but the radiologist was straight in again with, 'This looks concerning.' However he did add it looked small and treatable.

Rung today and asked to an appointment with the consultant in person on Thursday. I think I probably have to face what's coming but has anyone ever been told similar to me at the US (lump looks suspicious but then the biopsy's been OK)? Or is the face-to-face appt the clue? I also seem to be on a waiting list in my nhs app under 'Hospital referrals and appointment' where it says Breast Surgery, Hospital Name 'Waiting for appt' and 'Average waiting time for treatment: 9 weeks'. Surely I can't be on a waiting list for treatment / surgery when I haven't even seen the consultant?

Any thoughts gratefully accepted!

OP posts:
Opentooffers · 07/07/2024 22:55

Everyone's cancer is different so best to research the type you have rather than comparing. At the biopsy results appointment they should have been able to tell you the grade and proliferation index and size of your particular lump. Have they told you if it is hormone sensitive? ER score goes up to 8, they would also be able to say if its Her2 sensitive or not. This is all important for planning what treatment to have.

PaperbackWrighter · 08/07/2024 10:14

Hi @Opentooffers my breast cancer is one that needs further investigation under MRI as it presents differently to 70% of breast cancers (invasive lobular BC, doesn’t always present as a lump but as a formation) before I can be given a stage or a treatment plan. (They need to check that all the ultrasound brought up and was biopsied is all there is do they don’t have to operate twice, or do the wrong type of op). That’s why I don’t have a stage yet, and only a provisional grade. That’s why I’m still waiting, and finding it excruciating. That’s why (as my Breast cancer is 15% of breast cancers) I was feeling a little isolated and felt comforted to remember shrubrose said her friend had had the same kind (though not for her friend of course). I’m playing a waiting game for my full results, so hearing about others who had been in my boat was a comfort to me. I recently discovered someone in my book group had had it and speaking to her on Friday was a game changer for me and made my weekend bearable. I am aware every person’s case is different but in my situation speaking to those in a similar boat is helping me. So you can see, I am well placed to know the best approach for my situation right now.

OP posts:
dancingwhilstfacingthemusic · 08/07/2024 10:19

Sorry to read of this, OP. I’m in a similar boat and have a lumpectomy on Friday. Mine is a different type of bc.

it is a game changer when you have encouraging information from people who have been through similar experiences.

wishing you well.

PaperbackWrighter · 08/07/2024 12:59

Hi @dancingwhilstfacingthemusic thank you so much for your message and good wishes. Sorry to hear you're in a similar situation, but very glad for you that your lumpectomy is this week. Glad you've also taken strength from hearing about others' experiences. Wishing you all the very best xx

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