Lymphoma support thread

[rainbowhairchalk]

Hi!

I was diagnosed at the end of last year, I've had one round of 4 x Rituximab and I'm waiting for a consultant appointment in a couple of weeks.

I was feeling ok up until a couple of weeks ago but now the symptoms I had before are starting to return such as not being able to catch my breath, fullness, acid reflux and exhaustion. I'm guessing I'll need more treatment when I see my consultant.

I feel like this type of cancer is a hidden illness and I'm struggling to get my DH to understand that I'm feeling poorly again and that I'm worried that I'll need more treatment. I'm not worried about the treatment, it's ok, I guess I just feel a bit deflated, frustrated and sad.

I'll likely need treatment on and off for the rest of my life, again, I'm fine with that, I just don't know how to make my DH understand that I'll feel well and ok to do some stuff some weeks and other weeks I won't be ok and I need extra support or rather not to be made to feel bad because I haven't got the energy to do something 🤔

Urgh, now I've rambled, hopefully someone will understand how I'm feeling 🫣

I thought this would be a bit too specific 😅

My DH was diagnosed with lymphoma last summer. He had 6 rounds of chemo, and was told he is now in complete remission a couple of months ago. He will be having regular checks for the next 5 years.

He still gets tired and can't do what he used to. His consultant said it can take up to a year to get over the chemotherapy fully. As a family, we understand his new limitations, but it can be difficult to get used to at first.

I spent hours reading up on his illness. Macmillan and Lymphoma Action have some good online resources. Macmillan has specific forums for different types of cancer, so chances are you would find yours on there too - and this may help your DH understand what you are going through.

I wish you all the best in your treatment and recovery.