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Cancer

Find advice & support if you or someone you know has been diagnosed with cancer

Original poster

Papillary breast cancer

6 replies

FFSNHS · 14/12/2023 18:10

Hello, have any of you had any experience of this condition?

I went for a second ultrasound scan today. My symptoms haven't been taken seriously until very recently and now things seem to be moving fast. 1st scan & biopsies were 10 days ago. Today was to scan a larger area around the nipple that they didn't do last time.

After the scan I was told that I would receive an appointment in the post for a follow up with the surgical team.

I had only just got home when someone phoned to let me know that they wanted to see me out at the end of January in the surgical clinic. Then about 10 minutes later they're called again and said that they'd received an email from the consultant and that's she wanted to see me the first week of January.

I'm now feeling very confused and I'm not sure what's happening.

They were discussing papillary breast cancer and duct "findings" on my scan between themselves while I was actually getting dressed behind the curtain.

Because I was concerned about something else it didn't really hit me till I got home and got these phone calls that that is what they actually said.

Can anyone give me any reassurance? I am absolutely sick of being treated like some sort of idiot and spoken about in the room as though I'm not there (I'm registered blind).

I didn't get chance to ask any questions and have been left feeling very confused and alone. I'm not sure why I am writing this because I know that I noone will know what is going on but I'm feeling angry about the way the appointment went today considering all the previous fuckUps they already made. Thank you.

OP posts:
SewingBees · 14/12/2023 18:13

@FFSNHS I can't answer your question but there is a very active thread for those of us going through cancer treatment, and someone there may be able to help. I'm on the ap so it's hard to add a link but I'll try on a subsequent post. It's called the Cancer Support Thread if you want to search but you need to find the latest one.

Original poster
FFSNHS · 14/12/2023 18:14

Sorry, I forgot to say, Papillary breast cancer was also mentioned last appointment, apparently due to symptoms and what was seen on the scan. I was told the followup would be with the surgical team, but the surgeons wanted a larger area scanned. This was discussed on the phone last week.

OP posts:
Original poster
FFSNHS · 14/12/2023 18:16

SewingBees · 14/12/2023 18:13

@FFSNHS I can't answer your question but there is a very active thread for those of us going through cancer treatment, and someone there may be able to help. I'm on the ap so it's hard to add a link but I'll try on a subsequent post. It's called the Cancer Support Thread if you want to search but you need to find the latest one.

Thank you I'll try to find that

OP posts:
Original poster
FFSNHS · 14/12/2023 18:17

Thank you for the lonk, much appreciated

OP posts:
Mooneymcmoon · 17/12/2023 17:06

Hi - I have recently being diagnosed with this bc as well - according to my surgeon and bc nurse if you are going to get any bc this is the best one to have. The tumour is slow growing and normally oestrogen receptive as opposed to triple negative or Her2 and has a low reoccurrence rate. There is a group on FB called : We got the rare kind: Papillary Carcinoma of the Breast which provides links to lots of helpful and informative articles. Hope this helps

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