Hi Thandeka - wow, you've had a rocky road! I can sympathise with large chunks of your story. I too had a breast reduction (approx 12 years ago) and so had no idea if I would be able to breast feed at all.
I'm currently 38 weeks pregnant with number 2 but I faced some of these issues with my DS. (who is now 3). I was able to breast feed partially - at first all was going well. I had a c-section and to my delight he latched on really well in the recovery room. All was well till about day 5 when it transpired that he'd lost 15% of his birth weight. Whilst they were examining him at the hospital he had a small fit (maybe a febrile convulsion?) and so they went into emergency mode and did a lumbar puncture and a canula for antibiotics etc.
We were readmitted for 5 days and I fed him through a nasal gastric tube too (lots of similarities with your story here!) a mix of EBM and formula. On the last day, they asked me to do a yield and whilst I could express some milk, it wasn't quite enough for what they wanted me to give him to get his weight up so they advised formula top ups. I was told not to over rely on the formula top ups as ultimately it would kill my supply but inevitably I did (I was too nervous by then that I didn't have sufficient milk to meet his needs). I topped up after every feed but as his needs increased, the quantity of top up increased. We struggled on for about 11 weeks but my supply dwindled. I think I'd give top ups again, but not necessarily at every feed.
I never got on with the hand held breast pumps and so never pumped at home but was able to express with the hospital's breast pump when we were readmitted. That's one thing that I want to master this time. Have you read the Diana West book ("Defining your own success - breast feeding after breast reduction surgery")? I dipped into it last time and have just picked it up again. One thing that I've just read is that she doesn't think hand held breast pumps will suffice and says that hospital grade ones are the way forward when breast feeding after a reduction. I'm going to hire one I think - probably from the NCT, as you suggest.
I too took Fenugreek and also Blessed Thistle. Out of interest, did you take fenugreek straight after the birth? I definitely did last time but then read the other day somewhere that you should wait until the milk comes in as it may make your breasts more engorged - did that happen to you? I was really engorged last time and I don't think that DS could get anything from me (this was the day before he was readmitted). I'm going to try to read up some more on this - to see whether I should wait a few days before taking the galactagues.
Anyway, I do definitely recommend the Diana West, "Breastfeeding after breast reduction surgery" book. As I say, I haven't read all of it but it is useful and specially tailored for our circumstances.
I'm keen to give breast feeding a go again this time but am nervous. We'll never really know why he lost so much weight (breast reduction? c-section meaning milk late coming in? slight jaundice? just one of those things?) but its inevitable that I felt guilty. I'm determined to give it a go this time but not to beat myself up too much if I can't do it. I'll have the added complication of a toddler to look after this time - not sure how much that will hamper any efforts!
I'm so impressed with your efforts - it sounds like you have been really persistent and determined. Long may it continue!
Sorry for the essay, but your post really struck a chord with me, and as I'm due to have my baby next week (c-section scheduled for a week tomorrow), I guess it's all upfront in my mind again.