Hi all - I have posted elsewhere about this, but never on MN, so I thought it was worth a go. Please persevere and see if you can help me.
Quick background. DD is 10 months, was born via emcs and therefore did not have a chance to try to feed for a while after birth. She had big problems latching on and lost nearly a lb (she was 7lb13 at birth). Thankfully I had transferred back to the MLU so I was able to get serious help expressing colostrum and feeding and by the time we left she was latching using shields. Skin-to-skin for a couple of days at home weaned her off those.
Since then, I have had continuous pain in my nipples. I have Raynauds in my nipples (mildly in toes too but not fingers), which I reckon hinders the healing process of any damage. I have also suffered with mastitis, cracks, bleeding, blisters, blood blisters, etc - the lot. I am not sure about thrush, I have been treated for it but don't think it is actually that although I have experienced the shooting pains - but only in one nipple (my left is the worst). I think DD has always had a poor latch, but exactly what the problem is and how to correct it has baffled my amazing LLL counsellor who has worked with me throughout. We have lately wondered about tongue tie but if it is, it is not an obvious one; the nearest place that would look for the hidden ones is nearly 2 hours away and they don't operate on babies DD's age anyway even if there was a problem....
I use silverettes which keeps it bearable most of the time. I am going through another phase of having to use my Pilates breathing and toe-wiggling tricks as she latches on (she still feeds about 4-5 times during the day and a couple overnight), so I am a bit frustrated! It gets better and worse, but is very rarely totally pain free - even if it is ok at the beginning of a feed it gets sore by the end and I have to take her off. She has 6 teeth and I don't even notice her biting as it is no different to what I experience frequently anyway....!!!
Anyway, if you have read this I salute you and appreciate it. If anyone has any ideas of things I could try, or places I could go for help that would be amazing. Bottles are out - I have got this far without so I am not going to start now! And she doesn't like ebm via a bottle or cup either....that would be too co-operative. I am going to keep feeding until she is ready to stop (BLW and all that), but would really rather it was not painful, especially if there were the possibility of tandem feeding....
In case anyone wonders, this is fully genuine and I am not a troll. I am aware that it sounds unbelievable that I would put up with this discomfort for 10 months, but I am a truly stubborn mare and have always insisted that I would bf. Please please please any help or even a little encouragement while I get over this particular challenging time would really help.
Thank you.