My dd is now 7 months old and I can’t quite believe that she/we are still going through this. I feel for her deeply that she is still struggling with feeding and just constantly seeming in awful pain. We have been to the GP back and forth. Private paediatrician. Private tongue tie specialist. And then referred to paediatrician at the hospital who we still see regularly.
From around 2 weeks old things just became a real struggle with feeding. Arching back, refusing feeds, constipation, rash. GP prescribed Gavsicon which made constipation worse. Then trialled nutramigen for a week before HV tasked GP to put us back on regular formula, as baby had dropped centiles. I didn’t know much about CMPA at this point, so I had no idea that at it should have been atleast 2 weeks-6weeks. Anyway GP called to say maybe best to put her back on regular formula. She was on Hipp 1 but I knew this caused constipation so I really didn’t want to put her back on this again. So we agreed to try C&G Comfort she was on this for around 6 weeks still refusing feeds and unhappy but would be happy layed on back. She has always really resisted when being held so contact naps ended at 3 weeks old. Paediatrician prescribed Neocate and to begin with she was worse that ever, had awful trapped wind which she always struggled with on regular formula. But after two weeks she stopped refusing feeds and seemed to feed much better. We saw a real difference but it was short lived. She was then prescribed Omperzole. Made her sick. Then Lansoprazole and after 17 days she began to projectile vomit after every feed. It was like a burst pipe. She also had really acidic nappies. She was going 5-6 times a day and once I stopped the Lansoprazole this all stopped. Even though the Neocate is really thin, she never brings any milk up. But we are still told that it must be silent reflux but there’s no end in sight. She constantly is crying no matter what we do. The only thing she loves is going for walks in the buggy. Other than that she cries all day. Cries after feeding. Tried solids and I really thought this may help but it just made things worse. When eating solids she sound congested after and like it was all stuck in her throat. We asked the doctor why, if it’s silent reflux does she react to every medication she’s been given? We even tried gavsicon again recently and that also makes her sick and she refuses the feed after a ounce. Anyway we have an appointment for a barium swallow. I’m really nervous. I just want to make her comfortable and happy but at the moment there’s no end in sight and I’ve been searching for answers. I’m hoping we may get some from the test. Has anyone’s baby had this test before? What were the results? Was it okay? Nervous about her taking the liquid? Thank you for reading.