Meet the Other Phone. Protection built in.

Meet the Other Phone.
Protection built in.

Buy now

Please or to access all these features

Infant feeding

Get advice and support with infant feeding from other users here.

CMPA Please Help

5 replies

LPC20 · 28/12/2024 16:50

Looking for some advice / similar stories/reassurance.
My little boy is 14 weeks old and has had loose stools since he was born going up to 8 times a day. I EBF until November and I introduced 1 bottle of formula. The day after I found blood in his poo. Doctor prescribed aptimil pepti and I cut out all milk and soya (my husband has an epi pen for his allergies to milk and eggs so I have followed a very strict non-diary diet). The blood has continued since November and the doctors kept telling me to ‘wait six weeks.’ I waited the 6 weeks and the blood and loose stools were still happening. He began to develop reflux so I had him weighed and he had lost weight. Doctors finally took me seriously, stool sample was abnormal with high inflammation markers and now referred to dietitian, paediatrics and allergy clinic (awaiting the last two). The dietitian said she isn’t entirely convinced it is allergies and thinks it could be crohns, celiac, ulcerative colitis but my doctor said he’s too young for any of that and could only be his diet?? He’s been on SMA Alfamino for the last two weeks and I’ve cut out egg too and his poo was getting thicker and was only going twice a day but today he had very frothy explosive poo with stringy blood throughout again and I’m just at my wits end worrying all the time. Other than the above he is a smiley, happy, content baby. Is there anyone out there who has gone through something similar? Any advice? I did suggest to the dietitian stopping breast feeding and see if that would help but she said not to stop. Thank you

OP posts:
DreamingOfASilentNight · 28/12/2024 17:00

With blood in stools of a young baby for a prolonged period like this is absolutely be back at the Dr asap demanding a referral to paeds/ gastro urgently. Weight loss should be flashing up concerns for them too.
Id keep a diary of everything that happens, including your own diet if you're BF ing still.
I was always told not Breast feeding with CMPA was more realistically controllable as you have to be so extreme in even traces things you might ingest if you are breast feeding where with the formula you know exactly what a baby is getting and how much.
The doctors advice isn't working so this needs to be followed up and escalated. Sometimes you really have to push GPs with regard to shall babies, there seems to be a large pool who view all mothers of young babies as clueless and paranoid so you really have to stick your heels in.

LPC20 · 28/12/2024 18:54

Thank you for replying!

I must be at the doctors 4 out of 5 days a week at the minute with him. I’m also getting my health visitor to apply pressure and weigh him every 2 weeks (again led by me rather than the doctors). It’s really affecting my mental health now.

I have a paediatric appointment on the 9th Jan and allergy clinic on the 15th. The Dr said paediatrician will refer to gastro but it’s the waiting and every time I go to the doctors to ask if I can be seen more urgently I get pushed back.

Completely agree that the doctors just see me as an anxious first time mum! X

OP posts:
Runninghappy · 28/12/2024 18:57

my daughter is almost 16 (still with a life threatening milk allergy) so things may have changed, but she couldn’t tolerate pepti as it does still contain milk. She had neocate. But like I say, this was almost 16 years ago. Definitely keep pushing as we were fobbed off for months

IDontDrinkTea · 28/12/2024 18:59

Have you also given up soya? About half of children with cmpa also can’t tolerate soya

Superscientist · 28/12/2024 22:42

You need a food diary and list everything. My daughter has 20 food allergies all of which she reacted to me eating. It took a long time to identify them all! Absolutely anything can be an allergen!
Alfamino is a good formula. It was the only formula my daughter could have due to a coconut allergy and it's the only coconut free formula. If they don't settle on this one the other good formula to try is neocate. They are both completely dairy and soya free but both have other ingredients and one baby will settle better on one on than the other.

I had to do it all on my own and only got help once things were more figured out.

New posts on this thread. Refresh page