Hey everyone,
I’m hoping to encounter some support rather than advice about what I should do per se. Just wondering if anyone can relate.
I’m coming to terms with giving up breastfeeding at just under three months old due to loads of issues with it from day one. Before I gave birth, I was so determined to make breastfeeding work for us, to the point where I was drinking nearly 3L a day to ensure my supply was supported. I wasn’t under any impression that it was going to be easy, in fact I had a feeling it might be difficult for me because I have one polycystic ovary due to a previous ovarian tumour, but I was really so hopeful it could work out and feeling positive. I hired a lactation consultant before the birth so I could have support if it wasn’t working.
My supply came in fine a few days after birth and I was really excited it seemed to be working out, but it turned out my son’s latch was bad despite looking OK from the outside for a few weeks - the only way the midwives even suspected a tongue tie was when he kept dropping in weight, until he was on the second centile and he actually had to go to A&E because of it. My supply had dropped significantly at this time so supplementing with expressed breast milk wasn’t enough and we medically had to use formula - not a problem for me but I was still hopeful I could get back to mainly using breast milk at least.
His tongue tie was finally diagnosed at four weeks and it was severe - they cut it but re-learning to feed took another two weeks and by that time my supply was low despite pumping around the clock. That was when all the digestive issues started - terrible, terrible stomach issues including gas, screaming, diarrhoea, the works. Now, at nearly three months, he’s been diagnosed with Cows Milk Protein Allergy and they suspect his tongue tie has grown back - his latch is more comfortable but it’s still shallow and he simply can’t get my supply up on his own. I took a natural supplement to try and increase my supply and it worked but irritated his stomach lining even more, making everything worse, so I stopped that. I've seen a lactation consultant throughout and she's been helpful but can only suggest so much. I’ve tried power pumping three times a day and every hour and it doesn’t work - today I’m going for a scan to see if my hormones are also contributing to the issue due to PCOS. He actually reacts worse to my breast milk than to formula, shrieking a few hours after he’s had it - with ordinary formula oddly it’s better because at least it sits in his stomach a bit longer, whereas breast milk just goes straight through him.
My husband and I were up all night long, every night, just hearing his screams, gas, suffering. It was a nightmare, but he’s now been given prescribed formula and it’s too soon to tell, but he’s had his best night ever - he slept soundly for five hours. Who knows if it will work long-term, but it’s looking like CMPA more than ever. We’re both so relieved that it seems to be working.
The specialist paediatrician was very supportive and kind - she acknowledged the fact that I could cut out all traces of dairy and soy (because babies with CMPA are often allergic to both) in my diet to give my son ‘the small amount of breast milk I have been’ (I totally agree it’s a small amount, as much as I’ve tried to increase it), but I could see she was concerned because I am underweight and my son is sitting on the 25th centile, and he loses weight easily. She very gently implied that while she cannot ever tell someone to stop breastfeeding, but I have to consider whether it’s worth it. It’s an enormous lifestyle change because it’s not just ‘cutting out dairy products’ - it’s looking at every single food item for traces of dairy or soy, and it’s easy to miss something and be back to square one. All this - including the risk of a relapse - for a very small amount of breastmilk. That’s one thing, but meanwhile we’re very worried about him losing weight again and apparently if I’m not getting enough protein/calcium/fats, he can also lose weight even just by having a bottle or two a day of my milk because the nutritional value of it drops. She was absolutely NOT trying to put me off, and said she’d support us if I wanted to continue, but in my heart I feel like I’d be making that decision for me rather than him. He needs feeding stability and I cannot risk him losing weight again - he’s well under average as it is.
Sorry for the ramble, but I guess I’m just trying to come to terms with the fact that our breastfeeding journey may be over. I didn’t really get to have that ‘final feed’, I didn’t know it was going to be the last time. I appreciate that there’s always a way it can work out, but with low supply, his (probably) regrown tongue tie, shallow latch and CMPA I just know really it’s not worth the fear that he’ll drop in weight or I will and get ill, or he’ll have a relapse and suffer again. I’m not in the slightest ‘against’ using formula - I was mainly formula fed and my husband was exclusively from day one, and he’s the healthiest person I know (no joke). It’s just I feel sad that it didn’t work out for us and I do feel guilty for potentially making this decision.
Can anyone relate? Does anyone have any advice? I’m so tired and I just want to feel OK about the decision I make, whichever way I decide to go.