Thanks again to everyone for their help and advice. I have read all your helpful comments- thanks so much, just had no chance before to update.
@Pizzaandsushi - Sorry to hear you are going through the same thing
. A couple of different midwives/doctors have checked my DS for tongue tie so I'm hoping it hasn't been missed. Unfortunately while the nipple shields seem to help my DS with latching, he is still too lazy/sleepy to actually suck much - a couple of sucks and then he falls asleep/comes off no matter how much I try to wake him.
I think it is just too much effort for him for not enough milk - pumping for 30mins gets me just 30 ml (1 oz) if I've had a break between for 3/4 hours , or pumping for half the time/or every 1/2 hrs gets me half that (so half an oz). So I am lucky if he has enough for 2 bottles of expressed milk a day - not enough to breast feed him on/solely bottle feed him on and I am not sure it will ever increase enough as I just hate the feel of the pump so much and he barely sucks the breast to increase it that way..
But fingers crossed now at 12 days old he has now stopped losing weight/ is gradually increasing back towards his birth weight with formula. Over the last couple of days he is now gradually increasing amounts and because the bottle is quicker/easier for him now as he gains strength, he only falls asleep a couple of times during his bottle feeds which is progress. He also used to throw up too afterwards a lot more than he does now (although keeping him upright for 10 mins or after feeds does help a bit with that), but that has lessened each day as he's got older, so maybe it will for your DS too?
I understand how you are feeling though, about the lack of time/breast feeding problems - I'm still feeling despondent too. I'm incredibly lucky my birth partner does the vast majority of the formula bottle feeds and nappy changes, while I get on with pumping/skin to skin/time on the nipple shields - I would have given up otherwise long before now myself.
So with the minor improvements in DS other feeding although not my milk yet, I think I'm going to try to keep going just another week or two - to see if his sucking gets better as he gets naturally stronger/less sleepy/hopefully weight increases/jaundice goes. But if my milk keeps decreasing or nothing else changes, I'll give up. As you said, even with my birth partners help we don't have a life at the moment - the dogs aren't walked, no visitors, going out to the supermarket/hospital means the pumping/feeding/skin to skin schedule is thrown off. We get 3-4 hours total sleep in bits and have to fit in meals where we can - it's unsustainable longer term. He either needs to breast feed on demand and get enough or only formula bottle feed larger amounts every 4 hours or so, in order that we have a life.
I think we have to tell ourselves at least we've managed more than some women are able to (due to illness, family commitments etc) and have managed to pump and give him all that important yellowy colostrum? My milk is turning white now, so at least I've managed that.
Sorry about such a long post, I just suspect i won't get the chance to post again for a while and wanted to update/say thanks!