This is going to be a long one. DS was born 3 months ago (currently 7w corrected) and was severely underweight at birth. Spent time in the NICU, however since coming home we've had an awful time of it.
He's got silent reflux which in itself has been horrific. It's been relentless. Feed times have always been anxiety inducing as it can be so hard. I've rarely ever taken him out as the thought of having to feed him in public is awful. He will scream, arch his back etc.
GP changed his formula (unable to breastfeed due to a condition) to CMPA which made things so much worse as he wouldn't take to it and what he did take, he would spew right out. I don't believe he has CMPA as he does not have the symptoms related and my instinct was that this wasn't the solution so we took him off it. GP also prescribed omeprazole but a very small dose (2.5mg) due to his weight. We tried this for a month (was told usually works quite quickly) and I didn't see an improvement at all so we stopped. I was also apprehensive of overly medicating him as he has other unrelated meds. I decided to continue just holding him upright after a feed, tilting cot etc and we did see an improvement for around 2 weeks.
It was like a breakthrough and I could see the light at the end of a very dark tunnel. He was somewhat happier, starting to smile and seemed more content. However we have now regressed and it's so much worse as he's now developed a feeding aversion all of a sudden. I'm devasted that I've caused it by forcing him to finish his bottles due to my worry over his weight gain.
When I offer the bottle he will frantically suck but then start screaming and start flailing about and refuse to continue. He looks really panicked. I try to calm him down then offer again but the cycle continues. I know he's so hungry as he's sucking on his lips, rooting and trying to shove his hands in his mouth. He then falls asleep only to wake up again later and because he's quite clearly ravenous, he will take some but then as soon as he realises he's being fed, he will start again.
It's heartbreaking to see and I'm at my wits end. I've read that feeding aversion may not be related to the pain of the reflux, but he may have now associated feeding with pain so this is a stress response. To test this I've fed him whilst he was asleep and he drank ok which shows he may not be in active pain during these episodes.
Anyone with experience or advice to share?