breast feeding and ciclosporin?

[colleysmill]

Hi just wondered if anyone has had any experience with breast feeding whilst taking ciclosporin?

I've done some internet searching which has thrown up a few anecdotal accounts in medical papers implying its ok but general consensus seems to be its not compatible. I tried to call the breastfeeding network yesterday but was unable to get through.

I've got my 20 week scan next week and I know the question will be raised again whether I plan to bf and I want to be prepared! I had a bad experience with a midwife 4 years ago who argued with me that if it was safe to take in pregnancy it would be safe to bf and made me feel pretty rubbish about the whole feeding thing.

Last time I stopped the meds for 6 weeks to try to bf. Unfortunately ds had other ideas and I ended up ff from 4 days and ended up in a bit of mess myself. My consultant feels this time round stopping the meds wouldn't be a good idea for me so I'm guessing ff will be my only option but any experiences welcome!

LACTMED toxnet.nlm.nih.gov/cgi-bin/sis/htmlgen?LACT is pretty reassuring about it.

Read it and judge for yourself - seem to be no ill-effects and dosage that reaches the baby is minuscule.

Thanks tiktok - i will have a good read, have a think and a chat with my consultant.

Part of me is a little bit vary because I've had some recent issues with retaining too much of the drug in my system which was impacting on my kidney function so they've had to play around with my dosage a fair bit. Whether that's what's stopping the team saying yes I don't know.

But I'm always of the mindset you can't make a decision without all the facts :)

I would recommend phoning your local medicines information service at the hospital - part of the hospital pharmacy department. They should do a full literature review and give ou the recommendations. Personally, I would never go by what jst the MW say unless it's a v commonly used drug and tbh MW /medics should be using ths service to answer their drugs in preg/BF queries anyway (agsin, unless v commonly known drug) anyway.
LACTMED will certinly be one of the refs they will use but they should always do extra checks and not rely on just one reference source. Hope they are helpful.
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